ArticleJournal of community genetics2013
Awareness and interest in biospecimen donation for cancer research: views from gatekeepers and prospective participants in the Latino community.
Article in Journal of community genetics, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 27 citations in OpenAlex.
- Strategies to build trustworthiness and increase diversity in colorectal cancer biospecimen research: a multi-phase, multi-site qualitative study.Journal of community genetics · 2026Article
- Time to Listen: Engaging Latino Autistic Adults and Parents as Partners in Advancing Autism Research.Journal of autism and developmental disorders · 2025Article
- Our needs have been ignored for a long time: Factors affecting willingness of Black and Hispanic/Latinx sexual and gender minority communities to donate biospecimens.Annals of LGBTQ public and population health · 2024Article
- Recruitment and Retention of Healthy, Postmenopausal Women of African and European Ancestry: Results from a Dietary Intervention with Repeated Biospecimen Collections.Current developments in nutrition · 2022Article
- Racial/Ethnic Differences in Comprehension of Biospecimen Collection: a Nationwide University of Rochester Cancer Center NCI Community Oncology Research Program Study.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Article
- National health information technology priorities for research: A policy and development agenda.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Participant-Centered Strategies for Overcoming Barriers to Biospecimen Collection among Spanish-Speaking Latina Breast Cancer Survivors.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2020Article
- Article
- Project PLACE: Enhancing community and academic partnerships to describe and address health disparities.Advances in cancer research · 2020Review
- Responsiveness and adaptability in community engaged biobanking research: experiences from a Hispanic community.Journal of community genetics · 2019Article
- Views on clinical trial recruitment, biospecimen collection, and cancer research: population science from landscapes of the Haudenosaunee (People of the Longhouse).Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Article
- A Community-Driven Intervention for Improving Biospecimen Donation in African American Communities.Journal of racial and ethnic health disparities · 2018Article
- Approach and Methods of the 2016 Alaska Native Research Forum.American Indian and Alaska native mental health research (Online) · 2018Article
- Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations.Health promotion practice · 2017Article
- Confidentiality in Biobanking Research: A Comparison of Donor and Nondonor Families' Understanding of Risks.Genetic testing and molecular biomarkers · 2017Article
- Community Perceptions of Biobanking Participation: A Qualitative Study among Mexican-Americans in Three Texas Cities.Public health genomics · 2017Article
- Development and validation of the biobanking attitudes and knowledge survey-Spanish (BANKS-SP).Journal of community genetics · 2016Article
- Engaging diverse populations in biospecimen donation: results from the Hoy y Mañana study.Journal of community genetics · 2016Article
- Brief Report: Recruitment and Retention of Minority Children for Autism Research.Journal of autism and developmental disorders · 2016Article
- Giving samples or "getting checked": measuring conflation of observational biospecimen research and clinical care in Latino communities.BMC medical ethics · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
Latinos are one of the fastest-growing population groups in the USA, and are underrepresented in scientific research and even more so in genetic research. The disproportionately lower number of certain subpopulations participating in biomedical research has a significant impact on the representativeness of scientific outcomes. We established a collaboration with scientists at a designated National Cancer Institute comprehensive cancer center to test the feasibility of community-based approaches for engaging Latinos in biospecimen donation for cancer genomic research. A methods triangulation approach was applied to gain a deeper understanding from the community, that included key informant interviews with Latino community leaders (N = 6), four focus groups (N = 22) with members of the Latino community, and the use of an audience response system within the focus groups to capture quantitative data. Overall, the majority of participants had never participated in biospecimen donation; however, despite being unaware of the biobank, they expressed willingness to participate as a way to help advance research. Themes included: Confusion on what biospecimen donation process entails; Barriers to and incentives for participation; Strategies and locations for reaching the Latino community. Clear communication of the "public good" as it relates to biospecimen donation by healthy/non-patient participants is a less clearly conceptualized message; yet, the significance of delivering this message is important to gaining participation and increasing the diversity of samples available for cancer genomic studies from a broader community context.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.