SynthesisHealth expectations : an international journal of public participation in health care and health policy2015
Patient and service user engagement in research: a systematic review and synthesized framework.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04789902 (A Stepped Wedge Cluster Randomized Trial Designed to Evaluate the Effects of SurgeCon), which is not on this map. Cited by 359 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Stepped Wedge Cluster Randomized Trial Designed to Evaluate the Effects of SurgeCon: A Quality Improvement Surge Management Platform
Who cites it
359 citing papers in PubMed, 9 syntheses or guidelines pooled it.
- What makes patients engaged: a meta narrative review and multilevel perspective on patient engagement.BMC psychology · 2026Pooled it
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Pooled it
- Interventions to Increase Cancer Screening Adherence Among Somali Immigrants in the US and Europe: A Systematic Review.Journal of immigrant and minority health · 2024Pooled it
- Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Self-Report Measures Assessing Aspects of Personal Recovery in Relatives and Other Informal Carers of Those With Psychosis: A Systematic Review.Frontiers in psychology · 2022Pooled it
- Consumer engagement in health care policy, research and services: A systematic review and meta-analysis of methods and effects.PloS one · 2022Pooled it
- Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2021Pooled it
- Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.Health research policy and systems · 2021Pooled it
- Patient involvement in developing a patient-targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.FEEDBACK.GP.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- How to co-create context-sensitive analyses of health service experiences: proposed guidelines for contextualist collaborative thematic analyses with co-researchers.International journal of qualitative studies on health and well-being · 2026Article
- Patient Engagement Activities and Infrastructure Among US Veterans Affairs National Research Networks.Journal of general internal medicine · 2026Article
- Evaluating the Process and Outcome of a Primary Care Patient and Public Involvement (PPI) Programme: A Pilot Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Do Androids Dream of Lived Experience? Navigating Risks, Uncertainty, and Best Practices Around Generative AI in Patient and Public Involvement and Engagement.Journal of medical Internet research · 2026Article
- Partnerships and practices: a scoping review of engaging older adults living with frailty in the research process.Research involvement and engagement · 2026Review
- PARTNER: A Toolbox for Patient and Public Involvement Governance Within Health Professions Education Research.The clinical teacher · 2026Article
- Family Carer Involvement in Dementia Care Research: A Scoping Review and Expert Consultation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Evaluation of the Implementation and Contribution of Patient Partners on a Steering Committee at a University Hospital in the Province of Québec, Canada.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Exploring Stakeholder Involvement in Intervention Implementation Studies: Systematic Evidence Synthesis With an Evidence Gap Map Approach.Evaluation & the health professions · 2026Review
299 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is growing attention towards increasing patient and service user engagement (PSUE) in biomedical and health services research. Existing variations in language and design inhibit reporting and indexing, which are crucial to comparative effectiveness in determining best practices.
objectiveThis paper utilizes a systematic review and environmental scan to derive an evidence-based framework for PSUE.
designA metanarrative systematic review and environmental scan/manual search using scientific databases and other search engines, along with feedback from a patient advisory group (PAG). ELIGIBLE SOURCES: English-language studies, commentaries, grey literature and other sources (including systematic and non-systematic reviews) pertaining to patient and public involvement in biomedical and health services research. DATA EXTRACTED: Study description (e.g. participant demographics, research setting) and design, if applicable; frameworks, conceptualizations or planning schemes for PSUE-related endeavours; and methods for PSUE initiation and gathering patients'/service users' input or contributions.
resultsOverall, 202 sources were included and met eligibility criteria; 41 of these presented some framework or conceptualization of PSUE. Sources were synthesized into a two-part framework for PSUE: (i) integral PSUE components include patient and service user initiation, reciprocal relationships, colearning and re-assessment and feedback, (ii) sources describe PSUE at several research stages, within three larger phases: preparatory, execution and translational. DISCUSSION AND
conclusionsEfforts at developing a solid evidence base on PSUE are limited by the non-standard and non-empirical nature of much of the literature. Our proposed two-part framework provides a standard structure and language for reporting and indexing to support comparative effectiveness and optimize PSUE.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.