ArticleThe American journal of hospice & palliative care2014
Caregiver evaluation of the ACTIVE intervention: "it was like we were sitting at the table with everyone".
Article in The American journal of hospice & palliative care, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- How is Telehealth Used to Increase Access to Specialty Palliative Care? A Systematic Review.Journal of pain and symptom management · 2025Pooled it
- Hospice Family Caregiver Involvement in Care Plan Meetings: A Mixed-Methods Randomized Controlled Trial.The American journal of hospice & palliative care · 2017Trial
- Patient and Support Person Satisfaction Following a Whole Health-Informed Interdisciplinary Pain Team Meeting.Federal practitioner : for the health care professionals of the VA, DoD, and PHS · 2024Article
- Interventions for Family Caregivers of Patients Receiving Palliative/Hospice Care at Home: A Scoping Review.Journal of palliative medicine · 2024Article
- Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Qualitative Descriptive Study.Journal of medical Internet research · 2022Article
- A Goal-Directed Model of Collaborative Decision Making in Hospice and Palliative Care.Journal of palliative care · 2022Article
- Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Protocol for a Qualitative Study.JMIR research protocols · 2021Article
- Assessing the Reliability and Validity of a Brief Measure of Caregiver Quality of Life.Journal of pain and symptom management · 2019Article
- Innovative Tools to Support Family Caregivers of Persons with Cancer: The Role of Information Technology.Seminars in oncology nursing · 2019Review
- Home Hospice Caregivers' Perceived Information Needs.The American journal of hospice & palliative care · 2019Article
- Clinical Videoconferencing as eHealth: A Critical-Realist Review and Qualitative Meta-Synthesis.Journal of medical Internet research · 2018Review
- Adequacy of Depression Treatment in Spouses of Cancer Survivors: Findings From a Nationally Representative US Survey.Journal of general internal medicine · 2018Article
- An integrative review of information and communication technology based support interventions for carers of home dwelling older people.Technology and disability · 2018Article
- "They Are Talking About Me, but Not with Me": A Focus Group Study to Explore the Patient Perspective on Interprofessional Team Meetings in Primary Care.The patient · 2017Article
- Successful participation of patients in interprofessional team meetings: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.Cancer · 2016Review
- A multimethod analysis of shared decision-making in hospice interdisciplinary team meetings including family caregivers.Palliative medicine · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
Central to the hospice philosophy is the belief that the patient/family owns the plan of care. However, barriers prevent the majority of hospice patients/families from participating in the meetings where plans are created and revised. This study evaluates the participant experience of the ACTIVE (assessing caregivers for team intervention via video encounters) intervention, designed to use web conferencing technology to overcome the barriers of participation in development and review of individual care plans. Interviews were done with hospice caregivers following the death of their loved one. Caregivers involved in the intervention reported positive relationships with the hospice staff, felt involved in decision making, and got answers to their questions. Furthermore they reported staff was responsive to their needs and that participation increased their confidence, trust in the team, and provided a feeling of not being alone if they needed help. Challenges included issues with the technology, a feeling of being rushed and a frustration when they did not feel included or involved. Suggestions for improving the intervention included a more frequent meeting time, a need for to train hospice staff how to conduct web-based interactions, and suggestions for additional information for caregivers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.