ArticleHealth expectations : an international journal of public participation in health care and health policy2013
The care delivery experience of hospitalized patients with complex chronic disease.
Article in Health expectations : an international journal of public participation in health care and health policy, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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The trial behind it
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Who cites it
24 citing papers in PubMed, 55 citations in OpenAlex.
- Article
- Perceptions of Hospital Care Quality According to People Living With Multiple Long-Term Conditions: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Exploring dietitians' experiences caring for patients living with obesity in acute care: a qualitative study.International journal of obesity (2005) · 2025Article
- Perspectives of older adults with chronic illness on person-centered practice at an inpatient hospital department: a descriptive study.BMC geriatrics · 2024Article
- Experiences of hospital care for people with multiple long-term conditions: a scoping review of qualitative research.BMC medicine · 2024Article
- How do nurses support chronically ill clients' participation and self-management in primary care? A cross-country qualitative study.BMC primary care · 2022Article
- Definition of patient complexity in adults: A narrative review.Journal of multimorbidity and comorbidity · 2022Review
- Putting the Patient First: A Scoping Review of Patient Desires in Canada.Healthcare policy = Politiques de sante · 2021Article
- Association Between Multimorbid Disease Patterns and Pain Outcomes Among a Complex Chronic Care Population in Canada.Journal of pain research · 2020Article
- Speaking Up for Fundamental Care: the ILC Aalborg Statement.BMJ open · 2019Article
- "It's a fight to get anything you need" - Accessing care in the community from the perspectives of people with multimorbidity.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- A Policy Guide on Integrated Care (PGIC): Lessons Learned from EU Project INTEGRATE and Beyond.International journal of integrated care · 2017Article
- Community Care for People with Complex Care Needs: Bridging the Gap between Health and Social Care.International journal of integrated care · 2017Article
- Patterns of community follow-up, subsequent health service use and survival among young and mid-life adults discharged from chronic care hospitals: a retrospective cohort study.BMC health services research · 2016Article
- Evaluation of a Specialized Yoga Program for Persons Admitted to a Complex Continuing Care Hospital: A Pilot Study.Evidence-based complementary and alternative medicine : eCAM · 2016Article
- What makes stroke rehabilitation patients complex? Clinician perspectives and the role of discharge pressure.Journal of comorbidity · 2016Article
- Results from 10 Years of a CBT Pain Self-Management Outpatient Program for Complex Chronic Conditions.Pain research & management · 2016Article
- Perceived risk factors of health decline: a qualitative study of hospitalized patients with multimorbidity.Risk management and healthcare policy · 2015Article
- Tying eHealth Tools to Patient Needs: Exploring the Use of eHealth for Community-Dwelling Patients With Complex Chronic Disease and Disability.JMIR research protocols · 2014Article
- Communication challenges in complex medical environments.Continuum (Minneapolis, Minn.) · 2014Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis study investigated what is important in care delivery from the perspective of hospital inpatients with complex chronic disease, a currently understudied population. PARTICIPANTS AND
settingOne-on-one semi-structured interviews were conducted with inpatients at a continuing care/rehabilitation hospital (n = 116) in Canada between February and July 2011.
designThe study design was mixed methods and reports on patient characteristics and care delivery experiences. Basic descriptive statistics were run using SPSS version 17, and thematic analysis on the transcripts was conducted using NVivo9 software.
resultsPatients had an average of 5 morbidities and several illness symptoms including activity of daily living impairments, physical pain and emotional disturbance. Three broad themes (each with one or more subthemes) were generated from the data representing important components of care delivery: components of the care plan (a comprehensive assessment, supported transitions and a bio-psycho-social care package); care capacity and quality (optimal staff to patient ratios, quicker response times, better patient-provider communication and consistency between providers) and the patient-provider relationships (characterized by respect and dignity).
conclusionsAs health systems throughout the industrialized world move to sustain health budgets while optimizing quality of care, it is critical to better understand this population, so that appropriate metrics, services and policies can be developed. The study has generated a body of evidence on the important components of care delivery from the perspectives of a diverse group of chronically ill individuals who have spent a considerable amount of time in the health-care system. Moving forward, exploration around the appropriate funding models and skill mix is needed to move the evidence into changed practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.