ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2013
How much does it cost to care for survivors of colorectal cancer? Caregiver's time, travel and out-of-pocket costs.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 7 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Global Inequities in Unpaid Cancer Caregiving: A Systematic Review and Exploratory Meta-Analysis of Time and Cost Burden.Cancer medicine · 2026Pooled it
- The economic impact of cancer diagnosis to individuals and their families: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Experiencing financial toxicity associated with cancer in publicly funded healthcare systems: a systematic review of qualitative studies.Journal of cancer survivorship : research and practice · 2022Pooled it
- The Out-of-Pocket Cost Burden of Cancer Care-A Systematic Literature Review.Current oncology (Toronto, Ont.) · 2021Pooled it
- Financial toxicity associated with a cancer diagnosis in publicly funded healthcare countries: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Pooled it
- Feasibility, useability and acceptability of technology-based interventions for informal cancer carers: a systematic review.BMC cancer · 2018Pooled it
- The Valuation of Informal Care in Cost-of-Illness Studies: A Systematic Review.PharmacoEconomics · 2017Pooled it
- A proactive financial navigation intervention in patients with newly diagnosed gastric and gastroesophageal junction adenocarcinoma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- Evaluating the Impact of a Novel Program to Address Acute Food Insecurity Among Cancer Patients.Nutrients · 2024Article
- A systematic review of the economic burden of colorectal cancer.Health science reports · 2024Article
- Patient and Family Financial Burden in Cancer: A Focus on Differences across Four Provinces, and Reduced Spending Including Decisions to Forego Care in Canada.Current oncology (Toronto, Ont.) · 2024Article
- Caregiver costs and financial burden in caregivers of African American cancer survivors.Journal of cancer survivorship : research and practice · 2024Article
- Assessment of financial screening and navigation capabilities at National Cancer Institute community oncology clinics.JNCI cancer spectrum · 2023Article
- The burden of colorectal cancer survivors in the Netherlands: costs, utilities, and associated patient characteristics.Journal of cancer survivorship : research and practice · 2022Article
- Review
- Out-of-Pocket Spending for Cancer Medication, Financial Burden, and Cost Communication with Oncologists in the Last Six Months of Life in Israel.Healthcare (Basel, Switzerland) · 2021Article
- Patient and family financial burden associated with cancer treatment in Canada: a national study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- The monetary valuation of informal care to cancer decedents at end-of-life: Evidence from a national census survey.Palliative medicine · 2021Article
- A cost analysis of a community-based support centre for cancer patients and their families in Ireland: the EVeCANs study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- The contribution of service density and proximity to geographical inequalities in health care utilisation in Indonesia: A nation-wide multilevel analysis.Journal of global health · 2020Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCancer treatment is increasingly delivered in an outpatient setting. This may entail a considerable economic burden for family members and friends who support patients/survivors. We estimated financial and time costs associated with informal care for colorectal cancer.
methodsTwo hundred twenty-eight carers of colorectal cancer survivors diagnosed on October 2007-September 2009 were sent a questionnaire. Informal care costs included hospital- and domestic-based foregone caregiver time, travel expenses and out-of-pocket (OOP) costs during two phases: diagnosis and treatment and ongoing care (previous 30 days). Multiple regression was used to determine cost predictors.
resultsOne hundred fifty-four completed questionnaires were received (response rate = 68%). In the diagnosis and treatment phase, weekly informal care costs per person were: hospital-based costs, incurred by 99% of carers, mean = €393 (interquartile range (IQR), €131-€541); domestic-based time costs, incurred by 85%, mean = €609 (IQR, €170-€976); and domestic-based OOP costs, incurred by 68%, mean = €69 (IQR, €0-€110). Ongoing costs included domestic-based time costs incurred by 66% (mean = €66; IQR, €0-€594) and domestic-based OOP costs incurred by 52% (mean = €52; IQR, €0-€64). The approximate average first year informal care cost was €29,842, of which 85 % was time costs, 13% OOP costs and 2% travel costs. Significant cost predictors included carer age, disease stage, and survivor age.
conclusionInformal caregiving associated with colorectal cancer entails considerable time and OOP costs. This burden is largely unrecognised by policymakers, service providers and society in general. These types of studies may facilitate health decision-makers in better assessing the consequences of changes in cancer care organisation and delivery.
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