ArticleHealth and quality of life outcomes2013
Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY).
Article in Health and quality of life outcomes, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- Assessment of Differential Item Functioning in Health-Related Outcomes: A Simulation and Empirical Analysis with Hierarchical Polytomous Data.Computational and mathematical methods in medicine · 2017Trial
- Outcomes and standardized tools in telehealth physical therapy for children with cerebral palsy: A scoping review using the ICF framework.Developmental medicine and child neurology · 2026Article
- Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Chronic Disease in Pediatric Population-A Narrative Review of Psychosocial Dimensions and Strategies for Management.Children (Basel, Switzerland) · 2025Review
- Comparisons of EQ-5D-Y and PedsQL in pediatric patients with mild-to-moderate chronic kidney disease in longitudinal analyses.Health and quality of life outcomes · 2023Article
- Observational
- A New Web Score to Predict Health Status in Paediatric Patients with Chronic Diseases: Design and Development of the PENSAMI Study.Children (Basel, Switzerland) · 2021Article
- Decreased exercise capacity, strength, physical activity level and quality of life in adult patients with familial Mediterranean feverTurkish journal of medical sciences · 2021Article
- Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Item generation for a proxy health related quality of life measure in very young children.Health and quality of life outcomes · 2020Article
- Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children.Journal of patient-reported outcomes · 2019Article
- Characteristics of Future Models of Integrated Outpatient Care.Healthcare (Basel, Switzerland) · 2019Review
- Quality of life following surgery for congenital glaucoma: findings of the LVPEI congenital glaucoma registry.Eye (London, England) · 2019Article
- Psychometric Properties of Screening Questionnaires for Children With Handwriting Issues.Frontiers in psychology · 2019Article
- Pharmaceutical care and health related quality of life outcomes over the past 25 years: Have we measured dimensions that really matter?International journal of clinical pharmacy · 2018Review
- The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.Disability and rehabilitation · 2017Article
- The use of the EQ-5D-Y health related quality of life outcome measure in children in the Western Cape, South Africa: psychometric properties, feasibility and usefulness - a longitudinal, analytical study.Health and quality of life outcomes · 2017Observational
- Do patient-reported outcome measures cover personal factors important to people with rheumatoid arthritis? A mixed methods design using the International Classification of Functioning, Disability and Health as frame of reference.Health and quality of life outcomes · 2015Article
- Article
Corrections and comments
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Authors and funding
4 authors.
Funding
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Abstract
unlabelledChildren with chronic conditions often experience a long treatment which can be complex and negatively impacts the child's well-being. In planning treatment and interventions for children with chronic conditions, it is important to measure health-related quality of life (HrQoL). HrQoL instruments are considered to be a patient-reported outcome measure (PROM) and should be used in routine practice. PURPOSE: The aim of this study was to compare the content dimensions of HrQoL instruments for children's self-reports using the framework of ICF-CY.
methodThe sample consist of six instruments for health-related quality of life for children 5 to 18 years of age, which was used in the Swedish national quality registries for children and adolescents with chronic conditions. The following instruments were included: CHQ-CF, DCGM-37, EQ-5D-Y, KIDSCREEN-52, Kid-KINDL and PedsQL 4.0. The framework of the ICF-CY was used as the basis for the comparison.
resultsThere were 290 meaningful concepts identified and linked to 88 categories in the classification ICF-CY with 29 categories of the component body functions, 48 categories of the component activities and participation and 11 categories of the component environmental factors. No concept were linked to the component body structures. The comparison revealed that the items in the HrQoL instruments corresponded primarily with the domains of activities and less with environmental factors.
conclusionsIn conclusion, the results confirm that ICF-CY provide a good framework for content comparisons that evaluate similarities and differences to ICF-CY categories. The results of this study revealed the need for greater consensus of content across different HrQoL instruments. To obtain a detailed description of children's HrQoL, DCGM-37 and KIDSCREEN-52 may be appropriate instruments to use that can increase the understanding of young patients' needs.
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