ArticleJMIR research protocols2013
Barriers and Facilitators of Online Patient Portals to Personal Health Records Among Persons Living With HIV: Formative Research.
Article in JMIR research protocols, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 3 syntheses or guidelines pooled it, 67 citations in OpenAlex.
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Barriers and Facilitators to the Implementation of eHealth Services: Systematic Literature Analysis.Journal of medical Internet research · 2019Pooled it
- Barriers, Facilitators, and Solutions to Optimal Patient Portal and Personal Health Record Use: A Systematic Review of the Literature.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Pooled it
- "Get Ready and Empowered About Treatment" (GREAT) Study: a Pragmatic Randomized Controlled Trial of Activation in Persons Living with HIV.Journal of general internal medicine · 2019Trial
- Protocol for a randomized controlled trial of patient-portal-based screening for substance use among people with HIV.Frontiers in public health · 2025Article
- Patient Perspectives on Portal-Based Anxiety and Depression Screening in HIV Care: A Qualitative Study Using the Consolidated Framework for Implementation Research.International journal of environmental research and public health · 2024Article
- Population-Level Portal-Based Anxiety and Depression Screening Perspectives in HIV Care Clinicians: Qualitative Study Using the Consolidated Framework for Implementation Research.JMIR formative research · 2024Article
- Electronic Patient Portal Use Among People Living With HIV.Journal of medical Internet research · 2023Article
- A qualitative study of factors influencing ePHR adoption by caregivers and care providers of Alzheimer's patients: An extension of the unified theory of acceptance and use of technology model.Health science reports · 2023Article
- People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design.PLOS digital health · 2023Article
- Desires for Individual- and Interpersonal-Level Patient Portal Use for HIV Prevention Among Urban Sexual Minority Men: Cross-sectional Study.JMIR formative research · 2023Article
- The Factors Associated With Nonuse of and Dissatisfaction With the National Patient Portal in Finland in the Era of COVID-19: Population-Based Cross-sectional Survey.JMIR medical informatics · 2022Article
- Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease.BMC medical informatics and decision making · 2021Article
- Factors Affecting the Extent of Patients' Electronic Medical Record Use: An Empirical Study Focusing on System and Patient Characteristics.Journal of medical Internet research · 2021Article
- Sociotechnical Drivers and Barriers in the Consumer Adoption of Personal Health Records: Empirical Investigation.JMIR medical informatics · 2021Article
- Lived experiences of people living with HIV: a descriptive qualitative analysis of their perceptions of themselves, their social spheres, healthcare professionals and the challenges they face daily.BMC public health · 2021Article
- Using the Patient Portal Sexual Health Instrument in Surveys and Patient Questionnaires Among Sexual Minority Men in the United States: Cross-sectional Psychometric Validation Study.Journal of medical Internet research · 2021Article
- Patient Portal Implementation and Uptake: Qualitative Comparative Case Study.Journal of medical Internet research · 2020Article
- "They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research.Ethics & behavior · 2020Article
- Is research on patient portals attuned to health equity? A scoping review.Journal of the American Medical Informatics Association : JAMIA · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundFederal meaningful use standards are promoting adoption of online portals to personal health records (PHRs). However, relatively little is known regarding barriers and facilitators for vulnerable groups such as persons living with human immunodeficiency virus (PLWH).
objectiveThe objective of this study was to assess barriers and facilitators to use of online PHRs among PLWH.
methodsWe conducted formative research using a written waiting room survey among 120 PLWH regarding barriers and facilitators of portal PHR use. We supplemented findings with data collected from a PLWH focus group, where some members had personal experience with use of a portal.
resultsThe survey had 90 respondents. Eight PLWH participated in the focus group. Most patients (77/90, 86%) reported having at least some experience using the Internet and most expressed interest in features offered by the portal. Notably, 70% (63/90) expressed some interest in being taught how to use it to communicate with their provider. Focus group themes reinforced these findings, but also voiced concern regarding access to private computers.
conclusionsMany PLWH in our sample have experience using computers and most are interested in PHR features. However, computer or broadband access and privacy are important barriers.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.