ArticleJournal of pediatric hematology/oncology2013
Bereaved parents and siblings offer advice to health care providers and researchers.
Article in Journal of pediatric hematology/oncology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.Palliative medicine · 2020Pooled it
- The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.Journal of palliative medicine · 2019Pooled it
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- Article
- The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.Children (Basel, Switzerland) · 2024Article
- Parents' and healthcare professionals' experiences with the content of an individual care plan for pediatric palliative care: a mixed-method study.Palliative care and social practice · 2024Article
- Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks.BMC pediatrics · 2023Article
- Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Impact of resilience and social support on long-term grief in cancer-bereaved siblings: an exploratory study.BMC palliative care · 2022Article
- Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer.Journal of clinical psychology in medical settings · 2022Article
- Important Aspects Influencing Delivery of Serious News in Pediatric Oncology: A Scoping Review.Children (Basel, Switzerland) · 2021Article
- Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents.Pediatric blood & cancer · 2020Article
- Bereaved parents' experiences of research participation.BMC palliative care · 2018Article
- Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death.Italian journal of pediatrics · 2018Article
- Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers.Social work in health care · 2018Article
- Communication in pediatric oncology: State of the field and research agenda.Pediatric blood & cancer · 2018Review
- A Provider-Based Survey To Assess Bereavement Care Knowledge, Attitudes, and Practices in Pediatric Oncologists.Journal of palliative medicine · 2017Article
- Clinical Nurse Participation at Family Conferences in the Pediatric Intensive Care Unit.American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2016Article
- Commentary: Dennis D. Drotar Distinguished Research Award: Academic and Personal Reflections on Childhood Cancer Research Across the Illness Spectrum.Journal of pediatric psychology · 2016Article
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Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
objectiveTo determine how to improve care for families by obtaining their advice to health care providers and researchers after a child's death from cancer.
designFamilies with a surviving sibling (age, 8 to 17 y) were recruited from cancer registries at 3 hospitals in the United States and Canada 3 to 12 months (M=10.4, SD=3.5) after the child's death.
settingData were collected in the home.
participantsParticipants (N=99) included 36 mothers, 24 fathers, and 39 siblings from 40 families. OUTCOME MEASURES: Each participant completed a qualitative interview that was audio recorded, transcribed, and coded for thematic content.
findingsFive major themes included the need for: (a) improved communication with the medical team, (b) more compassionate care, (c) increased access to resources, (d) ongoing research, and (e) offering praise. Interwoven within the 5 themes was a subtheme of continuity of care.
conclusionsMany participants were pleased with the care the child with cancer received, but others noted areas in need of improvement, particularly medical communication and continuity of care. Additional research is needed to inform interventions to improve services for families of children with life-limiting conditions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.