ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2013
Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: multicentre national study results.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
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28 citing papers in PubMed, 70 citations in OpenAlex.
- A comparison of health-related quality of life between continuous ambulatory peritoneal dialysis and automated peritoneal dialysis in children with stage 5 chronic kidney disease in Thailand: a randomized controlled trial.Pediatric nephrology (Berlin, Germany) · 2025Trial
- Halitosis in young patients with chronic kidney disease: findings from a randomized controlled trial.Head & face medicine · 2024Trial
- The health-related quality of life in children with IgA vasculitis.Frontiers in pediatrics · 2025Article
- Social determinants of health and quality of life in children with chronic kidney disease: insights from Saudi Arabia.BMC nephrology · 2024Observational
- Socioeconomic Position and Health Among Children and Adolescents With CKD Across the Life-Course.Kidney international reports · 2024Review
- Effect of Executive Function on Health-Related Quality of Life in Children with Chronic Kidney Disease.International journal of nephrology and renovascular disease · 2024Article
- Comparisons of EQ-5D-Y and PedsQL in pediatric patients with mild-to-moderate chronic kidney disease in longitudinal analyses.Health and quality of life outcomes · 2023Article
- Illness-related parental stress and quality of life in children with kidney diseases.Pediatric nephrology (Berlin, Germany) · 2023Article
- The psychosocial needs of adolescent and young adult kidney transplant recipients, and associated interventions: a scoping review.BMC psychology · 2022Article
- Validity and reliability of the Dutch version of the PedsQL™ 3.0 End Stage Renal Disease Module in children with chronic kidney disease in Belgium.Pediatric nephrology (Berlin, Germany) · 2022Article
- Study of the association between generic and disease-specific quality of life and behavior problems in pediatric patients with chronic kidney disease stage 3 or higher and the quality of life and mental health of their primary caregivers.Pediatric nephrology (Berlin, Germany) · 2021Article
- Review
- Analysis of chronic kidney disease among national hospitalization data with 14 million children.BMC nephrology · 2021Article
- Health-related quality of life in children with immunoglobulin A nephropathy - results of a multicentre national study.Archives of medical science : AMS · 2021Article
- Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2020Article
- Psychosocial considerations and recommendations for care of pediatric patients on dialysis.Pediatric nephrology (Berlin, Germany) · 2020Review
- Examining Uncertainty in Illness in Parents and Children With Chronic Kidney Disease and Systemic Lupus Erythematosus: A Mediational Model of Internalizing Symptoms and Health-Related Quality of Life.Journal of clinical psychology in medical settings · 2020Article
- The association between socioeconomic disadvantage and parent-rated health in children and adolescents with chronic kidney disease-the Kids with CKD (KCAD) study.Pediatric nephrology (Berlin, Germany) · 2019Article
- Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.BMC nephrology · 2019Article
- Health-related quality of life changes following renal transplantation in children.Pediatric transplantation · 2019Article
Corrections and comments
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Authors and funding
18 authors at 9 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe aim of the study was to analyse the health-related quality of life (HRQoL) in Polish children with chronic kidney disease (CKD) dependant on the CKD stage, treatment modality and selected social life elements in families of the patients. Furthermore, potential differences between self-report and parent/proxy reports and the factors influencing them were assessed.
methodsA total of 203 CKD children (on haemodialysis (HD), peritoneal dialysis (PD) and conservative treatment (CT)) and their 388 parent/proxies were enrolled into a cross-sectional national study. The demographic and social data were evaluated. We used the Paediatric Quality of Life Inventory 4.0 Generic Core Scales to assess the HRQoL in children.
resultsHealth-related quality of life scores for all CKD groups were significantly lower in all domains compared with population norms, the lowest one being in the HD group. In CT children, HRQoL did not depend on the CKD stage. Both parents assessed the HRQoL of their children differently depending on their involvement in the care. There are differences between the HRQoL scores of the children and their parents.
conclusionThe HRQoL in children with CKD is lower than in healthy children. This is already observed in the early stages of the disease. The disease itself influences the child's mental state. Children on HD require special support on account of the lowest demonstrated overall HRQoL. Children's lower rating of the quality of life observed by their parents may render the patients unmotivated and adversely affect their adjustment to life in later years. It may also create conflicts between the parents and the children.
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