ArticleHarm reduction journal2013
Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action.
Article in Harm reduction journal, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Working with, learning from and giving back: Principles for collaborative research with people who use drugs.Addiction (Abingdon, England) · 2026Article
- A continuum of disconnection: the impacts of safer supply program closures on continuity of care, transition, and total loss of service access.Harm reduction journal · 2026Article
- The community representative council of the National Drug Abuse Treatment Clinical Trials Network: Co-design and early impact.Journal of substance use and addiction treatment · 2026Article
- A qualitative study of the impacts of a government crackdown against revenue sharing between pharmacies and patients in Vancouver, Canada.Discover public health · 2026Article
- "I'm not a graduate or doctor, yet we are all together:" articulating a partnership model for community-engaged research.Frontiers in public health · 2026Article
- Barriers and facilitators to injectable opioid agonist treatment engagement within a structural vulnerability context: a qualitative study of patient experiences in Vancouver, Canada.Harm reduction journal · 2025Article
- Vancouver's Alcohol Knowledge Exchange: lessons learned from creating a peer-involved alcohol harm reduction strategy in Vancouver's Downtown Eastside.Harm reduction journal · 2023Review
- Community-Engaged Research Ethics Training (CERET): developing accessible and relevant research ethics training for community-based participatory research with people with lived and living experience using illicit drugs and harm reduction workers.Harm reduction journal · 2023Article
- 'This is hardcore': a qualitative study exploring service users' experiences of Heroin-Assisted Treatment (HAT) in Middlesbrough, England.Harm reduction journal · 2023Article
- Applicability of a national strategy for patient-oriented research to people who use(d) substances: a Canadian experience.Research involvement and engagement · 2022Article
- An age-based analysis of nonmedical prescription opioid use among people who use illegal drugs in Vancouver, Canada.Substance abuse treatment, prevention, and policy · 2018Article
- Review
- Activism and scientific research: 20 years of community action by the Vancouver area network of drug users.Substance abuse treatment, prevention, and policy · 2018Article
- Telling our stories: heroin-assisted treatment and SNAP activism in the Downtown Eastside of Vancouver.Harm reduction journal · 2017Article
- "SALOME gave my dignity back": the role of randomized heroin trials in transforming lives in the Downtown Eastside of Vancouver, Canada.International journal of qualitative studies on health and well-being · 2014Article
- Yet they failed to do so: recommendations based on the experiences of NAOMI research survivors and a call for action.Harm reduction journal · 2013Article
- (Epistemic) Injustice and Resistance in Canadian Research Ethics Governance.Ethics & human researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis article highlights the experiences of a unique group. In January 2011, Dave Murray organized a group of participants from the North American Opiate Medication Initiative (NAOMI) heroin-assisted treatment clinical trials from 2005 to 2008 in the Downtown Eastside of Vancouver (DTES), B.C., Canada. The NAOMI Patients Association (NPA) is an independent group that currently meets every Saturday in the DTES. Currently, all members of the NPA are former participants in the heroin stream of the clinical trial. The NPA offers support, education, and advocacy to its members.
methodsDrawing on brainstorming sessions and focus groups that were conducted in the summer of 2011, this paper highlights the experiences of NPA members in their own words.
resultsThe findings provide a lens to understand how becoming a research subject for the NAOMI trial impacted the lives of NPA members, both positive and negative. The NPA members discuss ethics, consent, recommendations for future HAT programs and studies, and ongoing advocacy.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.