ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2013
Informatively missing quality of life and unmet needs sex data for immigrant and Anglo-Australian cancer patients and survivors.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 24 citations in OpenAlex.
- Sexual activity and cancer: A systematic review of prevalence, predictors and information needs among female Arab cancer survivors.European journal of cancer care · 2022Pooled it
- Sexual Satisfaction in Psycho-Oncology Patients: Characteristics and Correlates.Psychiatry investigation · 2026Article
- Sexual satisfaction and associated factors among patients with inflammatory bowel disease in Japan.Japan journal of nursing science : JJNS · 2025Article
- Equity across the cancer care continuum for culturally and linguistically diverse migrants living in Australia: a scoping review.Globalization and health · 2021Article
- Article
- The modified Memorial Symptom Assessment Scale Short Form: a modified response format and rational scoring rules.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- Handling missing items in the Hospital Anxiety and Depression Scale (HADS): a simulation study.BMC research notes · 2016Article
- Sexual health problems in French cancer survivors 2 years after diagnosis-the national VICAN survey.Journal of cancer survivorship : research and practice · 2016Article
- Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Article
- Quality of life of patients with advanced cancer treated in a regional hospital in Greece.HippokratiaArticle
- Integrative Review of the Supportive Care Needs of Arab People Affected by Cancer.Asia-Pacific journal of oncology nursingReview
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAlthough cancer can seriously affect peoples' sexual well-being, survivors and patients may be reluctant to answer questions about sex. This reluctance may be stronger for immigrants. This study aimed to investigate missing sex data rates and predictors of missingness in two large studies on immigrants and Anglo-Australian controls with cancer and to investigate whether those with missing sex data may have worse sexual outcomes than those with complete data.
methodsWe carried out two studies aimed at describing the quality of life (QoL) and unmet needs amongst Arabic, Chinese and Greek immigrants versus Anglo-Australians cancer survivors (n = 596, recruited from cancer registries) and patients (n = 845). Logistic regression was used to model the probability of having missing sex data in either of the questionnaires. We compared the mean of the unmet sex needs responses of those who had missing QoL sex data (but not needs) to those who had completed both, and vice versa.
resultsMissing sex data rates were as high as 65 %, with immigrants more likely to skip sex items than Anglo-Australians (p = 0.02 for registry study, p < 0.0001 for hospital study). Women, older participants and participants with more advanced disease had increased odds of missingness. There was evidence that data were informatively missing. Additionally, the questionnaire which stated that the sex questions are optional had higher missing data rates.
conclusionHigh missing data rates and informatively missing data can lead to biased results. Using the questionnaires that state that they may skip sex items may lead to an underestimation of sexual problems or an overestimation of quality of life.
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