ArticlePatient preference and adherence2013
Involving patients in quality indicator development - a systematic review.
Article in Patient preference and adherence, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Quality indicators for structure and process in peri-operative care: a systematic review.Anaesthesia · 2026Pooled it
- Measuring the Quality of Care for Older Adults With Multimorbidity: Results of the MULTIqual Project.The Gerontologist · 2022Pooled it
- Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.Health research policy and systems · 2021Pooled it
- Reporting standards for guideline-based performance measures.Implementation science : IS · 2016Pooled it
- Involving patients in setting priorities for healthcare improvement: a cluster randomized trial.Implementation science : IS · 2014Trial
- Codeveloping a Set of Quality of Care Indicators for People Living With Multiple Long-Term Conditions in Primary Care: Protocol for a Modified RAND/UCLA Study.JMIR research protocols · 2026Article
- Defining success together: a collaborative approach for client and provider-engaged outcomes indicator development in Ontario.Research involvement and engagement · 2026Article
- Measuring the Use of End-of-Life Symptom Relief Medications in Long-Term Care Homes-a Qualitative Study.Canadian geriatrics journal : CGJ · 2024Article
- Rasch analysis of a patient-reported outcome measure for self-perceived health among psychiatric patients in Denmark.BMJ open quality · 2024Article
- "I Hope That the People Caring for Me Know About Me": Exploring Person-Centred Care and the Quality of Dementia Care.Canadian geriatrics journal : CGJ · 2022Article
- Evaluating a Global Assessment Measure Created by Standardized Patients for the Multiple Mini Interview in Medical School Admissions: Mixed Methods Study.Journal of participatory medicine · 2022Article
- Developing guideline-based key performance indicators for recurrent miscarriage care: lessons from a multi-stage consensus process with a diverse stakeholder group.Research involvement and engagement · 2022Article
- Patient Perspectives of IBD Care and Services: An Integral Part of a Pan-Canadian Quality Improvement Initiative.Journal of the Canadian Association of Gastroenterology · 2021Article
- Quality of care for people with multimorbidity: a focus group study with patients and their relatives.BMJ open · 2021Article
- Patient-reported assessment of outcome after surgery for bone metastases.Orthopedic reviews · 2021Article
- International experiences in the development and implementation of guideline-based quality indicators: a qualitative study.BMJ open · 2021Article
- International consensus: ovarian tissue cryopreservation in young Turner syndrome patients: outcomes of an ethical Delphi study including 55 experts from 16 different countries.Human reproduction (Oxford, England) · 2020Article
- Qualitative study of the implementation of the Continuity of Care and Rehabilitation Program for people with severe mental disorders in Peru.Revista panamericana de salud publica = Pan American journal of public health · 2020Article
- [Qualitative study of the implementation of the Continuity of Care and Rehabilitation Program for people with severe mental disorders in PeruEstudo qualitativo sobre a implementação do Programa de Continuidade de Cuidados e Rehabilitação para pessoas com transtornos mentais graves no Peru].Revista panamericana de salud publica = Pan American journal of public health · 2020Article
- Patient-Reported Tolerance of Magnetic Resonance-Guided Radiation Therapy.Frontiers in oncology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundQuality indicators (QI) are used in many health care areas to measure, compare, and improve the quality of care. Ideas of quality differ between health care providers and patients, yet patients are not regularly involved in QI development nor does a methodological standard for patient involvement in QI development exist. In this study we systematically reviewed the medical journal articles and gray literature for published approaches for involving patients in QI development.
methodsWe searched medical literature databases (Medline, Excerpta Medica database, and Cumulative Index to Nursing and Allied Health Literature), screened websites, and contacted experts in the field of QI development for publications on approaches to patient involvement in QI development.
resultsEleven relevant journal articles and four web-published documents were included. Four major approaches to patient involvement were extracted from the literature: (1) focus group interviews, (2) self-administered questionnaires, (3) individual interviews, and (4) participation in panels during systematic consensus processes. Patients' views were collected by involving patients, patient representatives, or family members.
conclusionAlthough there is a large body of literature on QI, publications that describe approaches to patient involvement in QI development are scarce. In principle, indirect and direct methods of patient involvement can be distinguished, and it seems most promising to combine different approaches. However, the limited number of publications identified clearly shows that further research in this field is overdue and that the quality of reporting found in studies within this field needs to be improved.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.