ArticleThe oncologist2013
Long-term risk perceptions of women with ductal carcinoma in situ.
Article in The oncologist, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.
- Quality of life issues in patients with ductal carcinoma in situ: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Patient perspectives on testing for clonal hematopoiesis of indeterminate potential.Blood advances · 2022Trial
- Patient-reported outcomes, and perceptions and knowledge about recurrence in women with hormone receptor-positive breast cancer.Breast cancer research and treatment · 2025Article
- Article
- Labels, Language, and Other Strategies to Improve Communication About Lower Grade Forms of Ductal Carcinoma In Situ of the Breast: A National Delphi Survey.International journal of breast cancer · 2025Article
- Age and race/ethnicity differences in decisional conflict in women diagnosed with ductal carcinoma in situ.BMC women's health · 2024Article
- The effects of contemporary treatment of DCIS on the risk of developing an ipsilateral invasive Breast cancer (iIBC) in the Dutch population.Breast cancer research and treatment · 2024Article
- Article
- Factors associated with ductal carcinoma in situ (DCIS) treatment patterns and patient-reported outcomes across a large integrated health network.Breast cancer research and treatment · 2023Article
- Cardiovascular events and mortality in a population-based cohort initially diagnosed with ductal carcinoma in situ.BMC cancer · 2021Article
- Psychosocial Distress in Adult Patients Awaiting Cancer Surgery during the COVID-19 Pandemic.Current oncology (Toronto, Ont.) · 2021Article
- Ductal carcinoma in situ (DCIS): The importance of patient-reported outcomes (PRO).Current breast cancer reports · 2020Article
- Psychological morbidity in women diagnosed with ductal carcinoma in situ compared with women with early breast cancer receiving radiotherapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Quality of DCIS information on the internet: a content analysis.Breast cancer research and treatment · 2019Review
- Ductal carcinoma in situ: to treat or not to treat, that is the question.British journal of cancer · 2019Review
- National consensus recommendations on patient-centered care for ductal carcinoma in situ.Breast cancer research and treatment · 2019Review
- Cause-specific Mortality in a Population-based Cohort of 9799 Women Treated for Ductal Carcinoma In Situ.Annals of surgery · 2018Article
- Interventions are needed to support patient-provider decision-making for DCIS: a scoping review.Breast cancer research and treatment · 2018Article
- What Factors Influence Women's Perceptions of their Systemic Recurrence Risk after Breast Cancer Treatment?Medical decision making : an international journal of the Society for Medical Decision Making · 2018Article
- Recurrence risk perception and quality of life following treatment of breast cancer.Breast cancer research and treatment · 2017Article
Corrections and comments
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
introductionPrevious research has demonstrated that many women with ductal carcinoma in situ (DCIS) overestimate their risk for future breast cancer at the time of diagnosis and soon thereafter. This study aims to evaluate risk perceptions after 5 years. PATIENTS AND
methodsIn a longitudinal cohort study, we mailed long-term follow-up surveys to 315 women who had previously responded to a survey 18 months after they were diagnosed with DCIS, excluding those who had experienced recurrence and those not treated at our institution. We evaluated risk perceptions with items used previously in the cohort.
resultsOne hundred ninety-three women (61%) responded. The median time since diagnosis was 5.9 years. We excluded 12 because of recurrence. Of the 181 remaining, 32% perceived at least a moderate 5-year risk for developing DCIS again, 43% perceived at least a moderate lifetime risk for developing DCIS again, 27% perceived at least a moderate 5-year risk for invasive breast cancer, 38% perceived at least a moderate lifetime risk for invasive breast cancer, and 24% perceived at least a moderate risk for DCIS spreading to other body parts. In a multivariate model, worse financial status and higher perceived risk in the previous survey were the only predictors of at least a moderate perception of risk for DCIS spreading.
conclusionWomen with a history of DCIS continue to harbor inaccurate perceptions of their risk for future breast cancer events even 5 years after diagnosis.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.