ArticleGenome medicine2013
Harm, hype and evidence: ELSI research and policy guidance.
Article in Genome medicine, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed.
- Testing positive for a genetic predisposition to depression magnifies retrospective memory for depressive symptoms.Journal of consulting and clinical psychology · 2017Trial
- From designer babies to edited food: comparing public attitudes toward CRISPR technology and gene editing in Japan and the United States.BMC medical ethics · 2026Article
- Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan.Journal of human genetics · 2026Article
- Three decades of ethical, legal, and social implications research: Looking back to chart a path forward.Cell genomics · 2022Article
- Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI).BMC medical ethics · 2021Article
- Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment.American journal of medical genetics. Part A · 2021Article
- Genomics and Infectious Diseases: Expert Perspectives on Public Health Considerations regarding Actionability and Privacy.Ethics & human research · 2020Article
- Public reactions to direct-to-consumer genetic health tests: A comparison across the US, UK, Japan and Australia.European journal of human genetics : EJHG · 2020Article
- Qualitative Research on Expanded Prenatal and Newborn Screening: Robust but Marginalized.The Hastings Center report · 2019Article
- Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.The Hastings Center report · 2019Article
- How Do Patents Affect Follow-on Innovation? Evidence from the Human Genome.The American economic review · 2019Article
- Next-generation sequencing in precision oncology: Patient understanding and expectations.Cancer medicine · 2019Article
- A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research.Frontiers in genetics · 2019Article
- Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences.BMC medical informatics and decision making · 2018Article
- Blue Genes? Understanding and Mitigating Negative Consequences of Personalized Information about Genetic Risk for Depression.Journal of genetic counseling · 2018Article
- The Role of Genetics in Advancing Precision Medicine for Alzheimer's Disease-A Narrative Review.Frontiers in medicine · 2018Review
- Integrating precision cancer medicine into healthcare-policy, practice, and research challenges.Genome medicine · 2016Article
- Challenges and opportunities for ELSI early career researchers.BMC medical ethics · 2016Article
- Neurogenomics: Challenges and opportunities for Ghana.Applied & translational genomics · 2015Article
- Expanding ELSI to all areas of innovative science and technology.Nature biotechnology · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and genetic discrimination - seems to be informed more by speculation of harm and anecdote than by available evidence. Although a quest for evidence cannot always be allowed to delay policy choice, it seems axiomatic to us that policy options are improved by the incorporation of evidence.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.