ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2013
Development and validation of the positive affect and well-being scale for the neurology quality of life (Neuro-QOL) measurement system.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 47 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Creating and Optimizing Mindfulness Measures to Enhance and Normalize Clinical Evaluation (COMMENCE)
Optimization of a mHealth Physical Activity Promotion Intervention With Mindful Awareness for Adolescent and Young Adult Cancer Survivors
Who cites it
47 citing papers in PubMed, 1 synthesis or guideline pooled it, 140 citations in OpenAlex.
- Psychosocial interventions for cancer survivors: A meta-analysis of effects on positive affect.Journal of cancer survivorship : research and practice · 2019Pooled it
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- Efficacy of online mindfulness for the treatment of insomnia in pregnancy: A randomized clinical trial.PloS one · 2025Trial
- Latent variables for region of interest activation during the monetary incentive delay task.NeuroImage · 2021Trial
- Understanding sleep-related quality of life in caregivers of people with traumatic brain injury.Rehabilitation psychology · 2026Article
- Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals With Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder.Archives of physical medicine and rehabilitation · 2026Article
- Caregiver Networks of Older Adults With Alzheimer Disease: Design and Protocol for a Multisite Study Using Network Canvas.JMIR research protocols · 2026Article
- An online intervention targeting intimate partner violence in perinatal women with recent mental health care utilization: a multisite randomized clinical trial.Archives of women's mental health · 2026Article
- Experiential Aspects of Participation for People with Serious Mental Illnesses: Measure Validation and Preliminary Findings from Clubhouses in Hawai'i.Occupational therapy in mental health · 2025Article
- Validating the CG-STYLE measure in family caregivers of individuals living with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Resilience in Stroke survivor-care-partner Dyads (ReStoreD): a study protocol for a randomized-control trial.Trials · 2025Article
- A Mobile Health Intervention in Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: A Randomized Controlled Trial to Examine Health-Related Quality of Life.BMC digital health · 2025Article
- Article
- Development and validation of the HDSIM™ assessment system: a measure of hemorrhoid disease symptom impact.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- A Remotely Delivered, Personalized Music Therapy Pilot Intervention for Lonely Older Adults During the Covid-19 Pandemic.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024Article
- QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia.Health and quality of life outcomes · 2023Article
- The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups.Journal of patient-reported outcomes · 2023Article
- Feasibility of PROMIS using computerized adaptive testing during inpatient rehabilitation.Journal of patient-reported outcomes · 2023Article
- Examining Physical and Cognitive Function in Chronic Low Back Pain Through the Use of a Multisystem Resilience Framework.Pain medicine (Malden, Mass.) · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
purposeTo develop and validate an item-response theory-based patient-reported outcomes assessment tool of positive affect and well-being (PAW). This is part of a larger NINDS-funded study to develop a health-related quality of life measurement system across major neurological disorders, called Neuro-QOL.
methodsInformed by a literature review and qualitative input from clinicians and patients, item pools were created to assess PAW concepts. Items were administered to a general population sample (N = 513) and a group of individuals with a variety of neurologic conditions (N = 581) for calibration and validation purposes, respectively.
resultsA 23-item calibrated bank and a 9-item short form of PAW was developed, reflecting components of positive affect, life satisfaction, or an overall sense of purpose and meaning. The Neuro-QOL PAW measure demonstrated sufficient unidimensionality and displayed good internal consistency, test-retest reliability, model fit, convergent and discriminant validity, and responsiveness.
conclusionThe Neuro-QOL PAW measure was designed to aid clinicians and researchers to better evaluate and understand the potential role of positive health processes for individuals with chronic neurological conditions. Further psychometric testing within and between neurological conditions, as well as testing in non-neurologic chronic diseases, will help evaluate the generalizability of this new tool.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.