ArticleJournal of the American Medical Informatics Association : JAMIA
A question of trust: user-centered design requirements for an informatics intervention to promote the sexual health of African-American youth.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 1 of them a synthesis that pooled it.
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Who cites it
37 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Efficacy of Health Information Technology in Supporting Health Equity for Black and Hispanic Patients With Chronic Diseases: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Human-Centered Design for Public Health Innovation: Codesigning a Multicomponent Intervention to Support Youth Across the HIV Care Continuum in Mozambique.Global health, science and practice · 2022Trial
- The MILEPOST Framework for Integrating mHealth Into Community-Driven Interventions: Lessons Learned From a Human-Centered Design Approach in Rural Uganda.Global health, science and practice · 2026Article
- Equity-Oriented Design Processes and Evaluation of Digital Health Technologies for Black Communities Beyond Usability: Scoping Review.Journal of medical Internet research · 2026Article
- Determining the adoption intention and influencing factors of telerehabilitation by people with rehabilitation needs: a cross-sectional survey.BMC public health · 2026Article
- A randomized factorial experiment to optimize the design of a culturally tailored breast cancer screening outreach chatbot intervention.Frontiers in digital health · 2026Article
- Assessing a Couples-Based, Digital HIV Serostatus-Neutral Intervention (Para Ti, Para Mí, Para Nosotros) for Adult Cisgender Sexual Minority Male Couples in Lima, Peru: Protocol for a 6-Month Pilot Randomized Controlled Trial.JMIR research protocols · 2024Article
- Applying anti-racist approaches to informatics: a new lens on traditional frames.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Building trust in research through information and intent transparency with health information: representative cross-sectional survey of 502 US adults.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Equity and Accessibility of Washington State's COVID-19 Digital Exposure Notification Tool (WA Notify): Survey and Listening Sessions Among Community Leaders.JMIR formative research · 2022Article
- Gender-Specific Determinants of eHealth Literacy: Results from an Adolescent Internet Behavior Survey in Taiwan.International journal of environmental research and public health · 2022Observational
- Lessons Learned in Centering Youth Voices in HIV Prevention: The Adolescent Health Working Group.Progress in community health partnerships : research, education, and action · 2022Article
- Recommendations for design of a mobile application to support management of anxiety and depression among Black American women.Frontiers in digital health · 2022Article
- Guidance for publishing qualitative research in informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Intersection of Health Informatics Tools and Community Engagement in Health-Related Research to Reduce Health Inequities: Scoping Review.Journal of participatory medicine · 2021Article
- Uptake of and Engagement With an Online Sexual Health Intervention (HOPE eIntervention) Among African American Young Adults: Mixed Methods Study.Journal of medical Internet research · 2021Article
- Peer-to-Peer Sharing of Social Media Messages on Sexual Health in a School-Based Intervention: Opportunities and Challenges Identified in the STASH Feasibility Trial.Journal of medical Internet research · 2021Article
- Improving Teen Girls' Skills for Using Electronic Health Information.Health literacy research and practice · 2021Article
- African American Adolescents and Young Adults, New Media, and Sexual Health: Scoping Review.JMIR mHealth and uHealth · 2020Article
- Acceptability of smartphone applications for facilitating layperson naloxone administration during opioid overdoses.JAMIA open · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveWe investigated the user requirements of African-American youth (aged 14-24 years) to inform the design of a culturally appropriate, network-based informatics intervention for the prevention of HIV and other sexually transmitted infections (STI). MATERIALS AND
methodsWe conducted 10 focus groups with 75 African-American youth from a city with high HIV/STI prevalence. Data analyses involved coding using qualitative content analysis procedures and memo writing.
resultsUnexpectedly, the majority of participants' design recommendations concerned trust. Youth expressed distrust towards people and groups, which was amplified within the context of information technology-mediated interactions about HIV/STI. Participants expressed distrust in the reliability of condoms and the accuracy of HIV tests. They questioned the benevolence of many institutions, and some rejected authoritative HIV/STI information. Therefore, reputational information, including rumor, influenced HIV/STI-related decision making. Participants' design requirements also focused on trust-related concerns. Accordingly, we developed a novel trust-centered design framework to guide intervention design. DISCUSSION: Current approaches to online trust for health informatics do not consider group-level trusting patterns. Yet, trust was the central intervention-relevant issue among African-American youth, suggesting an important focus for culturally informed design. Our design framework incorporates: intervention objectives (eg, network embeddedness, participation); functional specifications (eg, decision support, collective action, credible question and answer services); and interaction design (eg, member control, offline network linkages, optional anonymity).
conclusionsTrust is a critical focus for HIV/STI informatics interventions for young African Americans. Our design framework offers practical, culturally relevant, and systematic guidance to designers to reach this underserved group better.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.