ArticleDisability and rehabilitation2013
The assessment of weight status in children and young people attending a spina bifida outpatient clinic: a retrospective medical record review.
Article in Disability and rehabilitation, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed, 34 citations in OpenAlex.
- Dietary approach to prevent obesity risk in Spina Bifida patients.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2020Trial
- Exploring the Extent and Nature of Disordered Eating Among Canadian Adolescents and Young Adults With Spina Bifida and Hydrocephalus.Child: care, health and development · 2025Article
- What Is Known About Eating Disorders and Disordered Eating in Individuals With Physical Disabilities? A Narrative Review.Child: care, health and development · 2025Review
- Application of Bioelectrical Impedance Analysis in Weight Management of Children with Spina Bifida.Nutrients · 2024Article
- Parent/caregiver's role in nutrition, physical activity, and food access among children diagnosed with spina bifida.Journal of pediatric rehabilitation medicine · 2023Article
- Metabolic Syndrome in Children With Myelomeningocele and the Role of Physical Activity: A Narrative Review of the Literature.Topics in spinal cord injury rehabilitation · 2022Review
- Sociodemographic factors and health-related, neuropsychological, and psychosocial functioning in youth with spina bifida.Rehabilitation psychology · 2021Article
- Growth profile assessment of young adults with tethered cord syndrome: a retrospective cohort analysis of Korean conscription data.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2021Article
- Predictors of Walking Activity in Children and Adolescents With Myelomeningocele.Archives of physical medicine and rehabilitation · 2020Article
- Article
- Social Skills in Youth With Spina Bifida: A Longitudinal Multimethod Investigation Comparing Biopsychosocial Predictors.Journal of pediatric psychology · 2017Article
- Obesity Prevention for Individuals with Spina Bifida.Current obesity reports · 2017Review
- A Call to Action: Setting the Research Agenda for Addressing Obesity and Weight-Related Topics in Children with Physical Disabilities.Childhood obesity (Print) · 2016Article
- Association of Obesity, BMI, and Hispanic Ethnicity on Ambulatory Status in Children with Spinal Dysraphism followed near the California-Mexico Border.Journal of health care for the poor and underserved · 2016Article
- Factors Associated with Mobility Outcomes in a National Spina Bifida Patient Registry.American journal of physical medicine & rehabilitation · 2015Article
- Obesity Prevention for Children with Developmental Disabilities.Current obesity reports · 2014Article
- Nutrition, metabolic syndrome, and obesity: Guidelines for the care of people with spina bifida.Journal of pediatric rehabilitation medicineReview
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeChildren with disabilities are two to three times more likely to become overweight or obese than typically developing children. Children with spina bifida (SB) are at particular risk, yet obesity prevalence and weight management with this population are under-researched. This retrospective chart review explored how weight is assessed and discussed in a children's SB outpatient clinic.
methodHeight/weight data were extracted from records of children aged 2-18 with a diagnosis of SB attending an outpatient clinic at least once between June 2009-2011. Body mass index was calculated and classified using Centers for Disease Control and Prevention cut-offs. Notes around weight, diet and physical/sedentary activities were transcribed verbatim and analysed using descriptive thematic analysis.
resultsOf 180 eligible patients identified, only 63 records had sufficient data to calculate BMI; 15 patients were overweight (23.81%) and 11 obese (17.46%). Weight and physical activity discussions were typically related to function (e.g. mobility, pain). Diet discussions focused on bowel and bladder function and dietary challenges.
conclusionsAnthropometrics were infrequently recorded, leaving an incomplete picture of weight status in children with SB and suggesting that weight is not prioritised. Bowel/bladder function was highlighted over other benefits of a healthy body weight, indicating that health promotion opportunities are being missed. Implications for Rehabilitation It is important to assess, categorise and record anthropometric data for children and youth with spina bifida as they may be at particular risk of excess weight. Information around weight categorisation should be discussed openly and non-judgmentally with children and their families. Health promotion opportunities may be missed by focusing solely on symptom management or function. Healthcare professionals should emphasise the broad benefits of healthy eating and physical activity, offering strategies to enable the child to incorporate healthy lifestyle behaviours appropriate to their level of ability.
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