ReviewJournal of the American College of Cardiology2013
Standardized cardiovascular data for clinical research, registries, and patient care: a report from the Data Standards Workgroup of the National Cardiovascular Research Infrastructure project.
Review in Journal of the American College of Cardiology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Clinical information modeling processes for semantic interoperability of electronic health records: systematic review and inductive analysis.Journal of the American Medical Informatics Association : JAMIA · 2015Pooled it
- Rationale and design of the Early Initiation of Intensification Lipid-Lowering Treatment in Acute Coronary Syndrome (ELITE-ACS): a real-world study.Journal of geriatric cardiology : JGC · 2026Article
- Epidemiological 11-Year Dynamics Study of Acute Myocardial Infarction: A Cohort Study in a Country with a Transitional Healthcare System.Global heart · 2026Observational
- Development of the International Cardiac Rehabilitation Registry Including Variable Selection and Definition Process.Global heart · 2022Article
- Cardiogenic Shock Among Patients with Acute ST-Segment Elevation Myocardial Infarction in a Middle Eastern Country: A Single-Center Experience.Journal of the Saudi Heart Association · 2022Article
- Analysis of influencing factors for prognosis of patients with ventricular septal perforation: A single-center retrospective study.Frontiers in cardiovascular medicine · 2022Article
- Clinical Characteristics and Risk Factors of In-Hospital Mortality in Patients With Acute Myocardial Infarction With Subsequent Gastrointestinal Bleeding: A Single-Center Experience.Frontiers in cardiovascular medicine · 2022Article
- Comparing Baseline Data From Registries With Trials: Evidence From the CathPCI Registry and DAPT Study.JACC. Cardiovascular interventions · 2021Article
- 2021 ACC/AHA Key Data Elements and Definitions for Heart Failure: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Data Standards (Writing Committee to Develop Clinical Data Standards for Heart Failure).Circulation. Cardiovascular quality and outcomes · 2021Article
- Rationale and design of the TAILOR-PCI digital study: Transitioning a randomized controlled trial to a digital registry.American heart journal · 2021Article
- Association of Ischemic Evaluation and Clinical Outcomes Among Patients Admitted With New-Onset Heart Failure.Journal of the American Heart Association · 2021Article
- Clinical Characteristics and Contemporary Prognosis of Ventricular Septal Rupture Complicating Acute Myocardial Infarction: A Single-Center Experience.Frontiers in cardiovascular medicine · 2021Article
- Multimorbidity in Older Adults With Cardiovascular Disease.Journal of the American College of Cardiology · 2018Review
- From Nonclinical Research to Clinical Trials and Patient-registries: Challenges and Opportunities in Biomedical Research.Revista espanola de cardiologia (English ed.) · 2017Review
- A Framework for Data Quality Assessment in Clinical Research Datasets.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Article
- Postdischarge Bleeding After Percutaneous Coronary Intervention and Subsequent Mortality and Myocardial Infarction: Insights From the HMO Research Network-Stent Registry.Circulation. Cardiovascular interventions · 2016Article
- A nursing information model process for interoperability.Journal of the American Medical Informatics Association : JAMIA · 2015Article
- A methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research.Journal of the American Medical Informatics Association : JAMIA · 2015Article
- Acute myocardial infarction post-gastrointestinal bleeding: A clinical dilemma with poor prognosis.Saudi journal of gastroenterology : official journal of the Saudi Gastroenterology AssociationArticle
- Creation and Implementation of a Prospective and Multicentric Database of Patients with Acute Myocardial Infarction: RIAM.Arquivos brasileiros de cardiologiaArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
Relatively little attention has been focused on standardization of data exchange in clinical research studies and patient care activities. Both are usually managed locally using separate and generally incompatible data systems at individual hospitals or clinics. In the past decade there have been nascent efforts to create data standards for clinical research and patient care data, and to some extent these are helpful in providing a degree of uniformity. Nonetheless, these data standards generally have not been converted into accepted computer-based language structures that could permit reliable data exchange across computer networks. The National Cardiovascular Research Infrastructure (NCRI) project was initiated with a major objective of creating a model framework for standard data exchange in all clinical research, clinical registry, and patient care environments, including all electronic health records. The goal is complete syntactic and semantic interoperability. A Data Standards Workgroup was established to create or identify and then harmonize clinical definitions for a base set of standardized cardiovascular data elements that could be used in this network infrastructure. Recognizing the need for continuity with prior efforts, the Workgroup examined existing data standards sources. A basic set of 353 elements was selected. The NCRI staff then collaborated with the 2 major technical standards organizations in health care, the Clinical Data Interchange Standards Consortium and Health Level Seven International, as well as with staff from the National Cancer Institute Enterprise Vocabulary Services. Modeling and mapping were performed to represent (instantiate) the data elements in appropriate technical computer language structures for endorsement as an accepted data standard for public access and use. Fully implemented, these elements will facilitate clinical research, registry reporting, administrative reporting and regulatory compliance, and patient care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.