ArticleHealth and quality of life outcomes2013
Non response, incomplete and inconsistent responses to self-administered health-related quality of life measures in the general population: patterns, determinants and impact on the validity of estimates - a population-based study in France using the MOS SF-36.
Article in Health and quality of life outcomes, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Variability of quality-of-life measurements and reporting in randomised controlled trials of pancreatic cancer: a systematic review.BMJ open · 2024Pooled it
- Pelvic floor physical therapy in the treatment of chronic anal fissure (PAF trial): quality of life outcome.Techniques in coloproctology · 2023Trial
- Recruiting general practitioners and patients with dementia into a cluster randomised controlled trial: strategies, barriers and facilitators.BMC medical research methodology · 2021Trial
- Quality of Life After Liver Transplantation-Results from a Large European Multinational Survey.Journal of clinical medicine · 2026Article
- Predictors for non-response to PROMs across three areas of inpatient rehabilitation - a nationwide cross-sectional study in Switzerland.Journal of patient-reported outcomes · 2026Observational
- Lateral Plate Versus Isolated Lag Screw Fixation of Unstable Distal Fibula Fractures: A Systematic Review.Advances in orthopedics · 2026Article
- Article
- Short- and long-term weekly patient-reported outcomes prediction undergoing radiotherapy: single-patient time series model vs. transformer-based multi-patient time series model.BioData mining · 2025Article
- Pull motivation and well-being as drivers of entrepreneurial success: The moderating role of social capital.PloS one · 2025Article
- A systematic review of the impact of pulmonary thromboendarterectomy on health-related quality of life.Pulmonary circulation · 2024Article
- Advancing methods for the biodemography of aging within social contexts.Neuroscience and biobehavioral reviews · 2023Review
- Stress, anxiety, and illness perception in patients experiencing delay in operative care due to the COVID-19 pandemic.Gynecologic oncology reports · 2023Article
- Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review.Health and quality of life outcomes · 2023Article
- Clinical outcome, quality of life, and mental health in long-gap esophageal atresia: comparison of gastric sleeve pull-up and delayed primary anastomosis.Pediatric surgery international · 2023Article
- Predicting non-response in patient-reported outcome measures: results from the Swiss quality assurance programme in cardiac inpatient rehabilitation.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2022Article
- Feasibility properties of the EQ-5D-3L and 5L in the general population: evidence from the GP Patient Survey on the impact of age.Health economics review · 2022Article
- Exploring the knowledge of community-based nurses in supporting parents of preterm babies at home: A survey-based study.Nursing open · 2022Article
- Alcohol abuse as a potential risk factor of solitary death among people living alone: a cross-sectional study in Kyoto, Japan.BMC public health · 2022Article
- Article
- [The change of quality of life in 52 patients with non-severe aplastic anemia after cyclosporine A therapy].Zhonghua xue ye xue za zhi = Zhonghua xueyexue zazhi · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHealth-related quality of life (HRQoL) measures are increasingly used in the general population. However, little is known about patterns and determinants of unanswered or unusable questionnaires and their consequences on estimates of HRQoL.
methodsThe 2003 Decennial Health Survey collected socio-demographic and health information, including HRQoL, for 30,782 adults representative of the French population. The pattern, determinants and impact on estimate validity of non, incomplete and inconsistent responses to the SF-36 questionnaire were determined. For this, phi coefficients, polytomous logistic regression models and multiple imputation methods were used.
resultsOnly 48% of the subjects eligible for the HRQoL measurement provided a complete and consistent SF-36 questionnaire. Three patterns of non-response and five of partial (incomplete or inconsistent) response were identified, sharing largely similar socio-demographic profiles (higher age, lower educational level and economic status, foreign background, and isolated). The consequences of non and partial responses on HRQoL estimates were large in several groups of subjects although these biases ran in opposite directions and partially neutralized each other.
conclusionsWhen measuring HRQoL in the general population, missing and inconsistent data are frequent, especially in elderly, educationally and socio-economically deprived, foreign and isolated groups. Methods for handling missing data are required to correct for potentially the associated and serious selection and non-differential information biases in studies targeting or investigating these groups.
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