Evidence map›Paper›PMID 23494583›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2013

Understanding how cancer patients actualise, relinquish, and reject advance care planning: implications for practice.

Natasha Michael, Clare O'Callaghan, Josephine Clayton, Annabel Pollard, Nikola Stepanov, Odette Spruyt, Michael Michael, David Ball

Registry-linked trialOpen access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04308356 ("What if we Talked About it…" Identification of Cancer Patients Taking up a Proposal for Discussions Dedicated to Anticipating Preferences of Care in the Event of Aggravation), which is not on this map. Cited by 18 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 1 pooled it
4.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04308356 completednot on this mapstarted 2020, after this paper: background citation

"What if we Talked About it…" Identification of Cancer Patients Taking up a Proposal for Discussions Dedicated to Anticipating Preferences of Care in the Event of Aggravation (DDA): Prospective Cohort Intervention Study Using a Mixed Methodology

TypeobservationalSponsorAssistance Publique - Hôpitaux de ParisRan2020 to 2024Enrolled71ConditionsNeoplasm Metastasis, Locoregional Neoplasm, Advanced CancerArmsDedicated Discussions on Anticipating preferences of care in the event of Aggravation (DDA), Autonomy Preference Index (API ) questionnaire - Information, anxiety and depression (HADS) questionnaire
3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 1 synthesis or guideline pooled it, 46 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Observational
  6. Patient-caregiver communication concordance in cancer-refinement of the Cancer Communication Assessment Tool in an Australian sample.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
    Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Article
  12. Does implementation matter if comprehension is lacking? A qualitative investigation into perceptions of advance care planning in people with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Article
  13. Evaluation of an advance care planning web-based resource: applicability for cancer treatment patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Article
  14. Article
  15. Integrated Care Planning for Cancer Patients: A Scoping Review.International journal of integrated care · 2017
    Article
  16. Article
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Natasha MichaelDepartment of Pain and Palliative Care, Peter MacCallum Cancer Centre, Peter Mac, Locked Bag 1, A'Beckett Street, Victoria, VIC, 8006, Australia. natasha.michael@petermac.org
Clare O'Callaghan
Josephine Clayton
Annabel Pollard
Nikola Stepanov
Odette Spruyt
Michael Michael
David Ball
Peter MacCallum Cancer Centre · AUUniversity of Melbourne · AUUniversity of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeAlthough advance care planning (ACP) is recognised as integral to quality cancer care, it remains poorly integrated in many settings. Given cancer patients' unpredictable disease trajectories and equivocal treatment options, a disease-specific ACP model may be necessary. This study examines how Australian cancer patients consider ACP. Responses will inform the development of an Australian Cancer Centre's ACP programme.

methodsA constructivist research approach with grounded theory design was applied. Eighteen adults from lung and gastro-intestinal tumour streams participated. Participants first described their initial understanding of ACP, received ACP information, and finally completed a semi-structured interview assisted by the vignette technique. Qualitative inter-rater reliability was integrated.

resultsParticipants initially had scant knowledge of ACP. On obtaining further information, their responses indicated that: For cancer patients, ACP is an individualised, dynamic, and shared process characterised by myriad variations in choices to actualise, relinquish, and/or reject its individual components (medical enduring power of attorney, statement of choices, refusal of treatment certificate, and advanced directive). Actualisation of each component involves considering, possibly conversing about, planning, and communicating a decision, usually iteratively. Reactions can change over time and are informed by values, memories, personalities, health perceptions, appreciation of prognoses, and trust or doubts in their substitute decision makers.

conclusionFindings endorse the value of routinely, though sensitively, discussing ACP with cancer patients at various time points across their disease trajectory. Nonetheless, ACP may also be relinquished or rejected and ongoing offers for ACP in some patients may be offensive to their value system.

Indexed as

Advance Care PlanningCommunicationDecision MakingAdultAdvance DirectivesAgedAustraliaFemaleHumansMaleMiddle AgedModels, PsychologicalNeoplasmsReproducibility of ResultsTrust

Identifiers

PMID23494583
OpenAlexW1988206978

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.