ArticleParkinson's disease2013
A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique.
Article in Parkinson's disease, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it, 42 citations in OpenAlex.
- Patient With Parkinson Disease and Care Partner Perceptions of Key Domains Affecting Health-Related Quality of Life: Systematic ReviewNeurology · 2024Pooled it
- Exploring the preferences of multiple stakeholder groups for family involvement in early intervention services for psychosis: A cross-sectional mixed-methods study.PLOS mental health · 2026Article
- Observed and Patient-Perceived Information Provision When Diagnosed With Parkinson's Disease.Movement disorders clinical practice · 2025Observational
- Exploring the Impact of Parkinson's Disease on Driving: A Population-Based Survey.Movement disorders clinical practice · 2025Article
- [How the implementation of a school for people with Parkinson's disease can succeed-Results of a consensus study and a formative evaluation].Der Nervenarzt · 2024Article
- How Information Affects Patients with Parkinson's Disease: A Scoping Review of the Literature.Journal of Parkinson's disease · 2024Article
- Health care experiences of people with Parkinson's disease in Australia.BMC geriatrics · 2023Article
- Disease modification in gout: a qualitative study of gout expert rheumatologists.Rheumatology advances in practice · 2022Article
- "I wish it had a place to go": a nominal group study of barriers to the effectiveness of non-surgical treatments for knee osteoarthritis inclusive of minority populations.Arthritis research & therapy · 2021Article
- Pharmacists' clinical knowledge and practice in the safe use of contraceptives: real knowledge vs. self-perception and the implications.BMC medical education · 2021Article
- Coping Styles among People with Parkinson's Disease: A Three-Year Follow-Up Study.Behavioral sciences (Basel, Switzerland) · 2020Article
- "An Expanded Window of Understanding a Changed Everyday Life"-Experiences From Patients With Long-Term Conditions After Attending Group Learning Sessions.Journal of patient experience · 2020Article
- Self-Management Education for Persons with Parkinson's Disease and Their Care Partners: A Quasi-Experimental Case-Control Study in Clinical Practice.Parkinson's disease · 2020Article
- Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.Health informatics journal · 2019Article
- Gout and sexual function: patient perspective of how gout affects personal relationships and intimacy.BMC rheumatology · 2019Article
- Goals of gout treatment: a patient perspective.Clinical rheumatology · 2018Article
- Needs of Persons with Neurological Disorders.Indian journal of psychiatric social work · 2018Article
- Gout and comorbidity: a nominal group study of people with gout.Arthritis research & therapy · 2017Article
- Self-management program participation and social support in Parkinson's disease: Mixed methods evaluation.Physical & occupational therapy in geriatrics · 2017Article
- Impact of limiting visual input on gait: Individuals with Parkinson disease, age-matched controls, and healthy young participants.Somatosensory & motor research · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background. Parkinson's disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson's disease (PwP) has the potential to change patient's lives. Objectives. To determine what information PwP perceive could enhance their quality of life. Methods. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked "what information do you want to know about that would help you live well with PD?" Silent generation of ideas preceded discussion followed by anonymous ranking of items. A "summary score" (sum of rank × frequency) was calculated. Results. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. Conclusions. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.