ArticleJournal of cancer survivorship : research and practice2013
Are survivorship care plans responsive to African-American breast cancer survivors?: voices of survivors and advocates.
Article in Journal of cancer survivorship : research and practice, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 2 syntheses or guidelines pooled it, 47 citations in OpenAlex.
- The use of survivorship care plans by female racial and ethnic minority breast cancer survivors: a systematic review.Journal of cancer survivorship : research and practice · 2020Pooled it
- Cancer survivors' experiences of using survivorship care plans: a systematic review of qualitative studies.Journal of cancer survivorship : research and practice · 2015Pooled it
- Outcomes and satisfaction after delivery of a breast cancer survivorship care plan: results of a multicenter trial.Journal of oncology practice · 2015Trial
- Development of a prostate cancer survivorship care toolkit for Black men with clinical and contextual tailoring.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Survivorship care guidance in a diverse cancer survivor population: Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE) Study.Journal of cancer survivorship : research and practice · 2026Article
- A scoping review of the evidence on survivorship care plans among minority, rural, and low-income populations.Journal of cancer survivorship : research and practice · 2025Article
- Supportive Care Needs of Patients with Breast Cancer Who Self-Identify as Black: An Integrative Review.Current oncology (Toronto, Ont.) · 2025Review
- The Role of Spirituality on Physical Activity and Sleep Among African American Long-Term Breast Cancer Survivors.Journal of racial and ethnic health disparities · 2024Article
- Structural Racism, Lifestyle Behaviors, and Obesity-related Cancers among Black and Hispanic/Latino Adults in the United States: A Narrative Review.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2023Review
- An exploration of the needs and experiences of informal caregivers for Black breast cancer patients.SSM. Qualitative research in health · 2022Article
- Communicating Critical Information to Cancer Survivors: an Assessment of Survivorship Care Plans in Use in Diverse Healthcare Settings.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Article
- Article
- An overview of the unique challenges facing African-American breast cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Review
- Article
- Toward equitably high-quality cancer survivorship care.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2019Article
- Cardiovascular risk and communication among early stage breast cancer survivors.Patient education and counseling · 2017Article
- Psychosocial concerns and needs of cancer survivors treated at a comprehensive cancer center and a community safety net hospital.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2017Article
- Post-treatment problems of African American breast cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2016Article
- Follow-up Care Education and Information: Identifying Cancer Survivors in Need of More Guidance.Journal of cancer education : the official journal of the American Association for Cancer Education · 2016Article
- Survivorship Care Plan Information Needs: Perspectives of Safety-Net Breast Cancer Patients.PloS one · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAfrican-American breast cancer survivors (AABCS) suffer the greatest from cancer recurrence, morbidity, and mortality in part due to the lack of cancer follow-up care and surveillance. To improve survival and survivorship, the Institute of Medicine advises that cancer survivors be provided a survivorship care plan (SCP). The current study investigated AABCS' understanding of SCP and gathered preliminary feedback on infusing cultural and socioecological responsiveness.
methodsThe study embraced a community-based participatory research framework. Three facilitated, structured, consensus meetings were conducted with AABCS (N = 25) and advocates (N = 3) to provide information towards identifying the content domains of an SCP that are culturally responsive to AABCS.
resultsAABCS recommended inclusion of patient-centered information on the purpose and use of the SCP. They raised concerns that higher mortality in AABCS may be due to greater comorbidities and inadequate surveillance and follow-up care. Participants recommended that the SCP document all comorbidities and medications, regardless of relationship to cancer; referrals for cancer-related providers; and culturally informed health advisories.
conclusionStudy findings indicate that the available SCP template lacked adequate content on health history, comorbidity, health promotion, and functioning. These factors constitute the underlying clinical, psychosocial, and behavioral risks for poor disease outcomes that may be exacerbated in AABCS. IMPLICATIONS FOR CANCER SURVIVORS: SCPs are intended to educate and activate patients to join their oncology care team as informed partners. However, the emerging science and implementation of SCPs seem void of patient input. Our investigation suggests a practical approach for survivor engagement in the SCP discourse to increase their cultural responsiveness and patient-centeredness.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.