ArticleOncology nursing forum2013
Ovarian cancer survivors' experiences of self-advocacy: a focus group study.
Article in Oncology nursing forum, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Trial
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- The development trajectory of self-advocacy in patients with adjuvant chemotherapy after breast cancer surgery and its predictors.Medicine · 2026Article
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- Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study.Nursing reports (Pavia, Italy) · 2025Article
- Influencing factors of self-advocacy in stroke patients from multiple perspectives: a qualitative study.BMC health services research · 2025Article
- Self-advocacy positive perceptions and stage experiences in patients who had a stroke: a qualitative study in China.BMJ open · 2024Article
- Article
- Exploring long-term cancer survivors' care experiences and unmet needs: protocol for a qualitative study.BMC cancer · 2024Article
- Women with ovarian cancer's information seeking and avoidance behaviors: an interview study.JAMIA open · 2024Article
- Describing Self-Advocacy in Underrepresented Women With Advanced Cancer.Oncology nursing forum · 2023Article
- What are We Asking Patients to Do? A Critical Ethical Review of the Limits of Patient Self-Advocacy in the Oncology Setting.The New bioethics : a multidisciplinary journal of biotechnology and the body · 2023Article
- Self-advocacy Behaviors and Needs in Women with Advanced Cancer: Assessment and Differences by Patient Characteristics.International journal of behavioral medicine · 2023Article
- Knowledge Acquisition and Social Support in Online Health Communities: Analysis of an Online Ovarian Cancer Community.JMIR cancer · 2022Article
- Oncology Nurses' Role in Promoting Patient Self-Advocacy.Clinical journal of oncology nursing · 2022Article
- "I pretty much followed the law, and there weren't any decisions to make": A qualitative study of self-advocacy experiences of men with cancer.Nursing & health sciences · 2022Article
- Challenges of Ovarian Cancer Patient and Caregiver Online Health Information Seeking.Proceedings of the Association for Information Science and Technology. Association for Information Science and Technology · 2021Article
- Racial differences in symptom management experiences during breast cancer treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- The Female Self-Advocacy in Cancer Survivorship Scale: A validation study.Journal of advanced nursing · 2018Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
PURPOSE/
objectivesTo explore ovarian cancer survivors' experiences of self-advocacy in symptom management. RESEARCH APPROACH: Descriptive, qualitative.
settingA public café in an urban setting.
participants13 ovarian cancer survivors aged 26-69 years with a mean age of 51.31. METHODOLOGIC APPROACH: Five focus groups were formed. Focus group discussions were audio recorded and transcribed verbatim. The content was analyzed using the constant comparison method with axial coding. In-depth interviews with 5 of the 13 participants occurred via telephone one to five months after each focus group meeting to clarify and expand on identified themes. Preliminary findings were shared with all participants for validation.
findingsTwo major themes emerged from the data: (a) knowing who I am and keeping my psyche intact, and (b) knowing what I need and fighting for it. Exemplar quotations illustrate the diverse dimensions of self-advocacy. In addition, a working female-centric definition of self-advocacy was attained.
conclusionsWomen have varying experiences with cancer- and treatment-related symptoms, but share a common process for recognizing and meeting their needs. Self-advocacy was defined as a process of learning one's needs and priorities as a cancer survivor and negotiating with healthcare teams, social supports, and other survivors to meet these needs.
interpretationThis phenomenologic process identified key dimensions and a preliminary definition of self-advocacy that nurses can recognize and support when patients seek and receive care consistent with their own needs and preferences. KNOWLEDGE TRANSLATION: Self-advocacy among female cancer survivors is a process of recognizing one's needs and priorities and fighting for them within their cancer care and life. Practitioners can support female cancer survivors through the process of self-advocacy by providing them with skills and resources in making informed choices for themselves.
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