ArticleBMJ open2013
Hospitalisation rates for children with intellectual disability or autism born in Western Australia 1983-1999: a population-based cohort study.
Article in BMJ open, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 3 syntheses or guidelines pooled it, 56 citations in OpenAlex.
- Healthcare Utilisation and Barriers and Facilitators of Healthcare Access for Young People With Intellectual Disability: A Systematic Review.Journal of intellectual disability research : JIDR · 2026Pooled it
- Enhancing emergency department care for individuals with autism spectrum disorder across the lifespan: a systematic review.Frontiers in health services · 2026Pooled it
- A systematic review of the biological, social, and environmental determinants of intellectual disability in children and adolescents.Frontiers in psychiatry · 2022Pooled it
- Applying adaptive research methods to explore health literacy in young people with intellectual disability.Health promotion international · 2026Article
- Article
- The Forgotten Voices: Enabling Children and Young People With Intellectual Disability to Express Their Views on Their Inpatient Hospital Experience.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Development and implementation of measurement-based care for children and youth with complex mental and neurodevelopmental needs: early experiences from Ontario's Extensive Needs Service.Frontiers in psychiatry · 2025Article
- Online health literacy resources for people with intellectual disability: protocol for a grey literature scoping review.BMJ open · 2024Article
- Perspectives on the essential skills of healthcare decision making in children and adolescents with intellectual disability.International journal for equity in health · 2024Review
- Planned and unplanned hospital admissions and health-related school absence rates in children with neurodisability: Protocol for a population-based study using linked education and hospital data from England.NIHR open research · 2024Article
- Health service use for young males and females with a mental disorder is higher than their peers in a population-level matched cohort.BMC health services research · 2022Article
- Unscheduled healthcare for children with intellectual disabilities: A systematic scoping review.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Inequities in quality and safety outcomes for hospitalized children with intellectual disability.Developmental medicine and child neurology · 2022Article
- Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.BMJ open · 2021Article
- The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Creating equitable healthcare quality and safety for children with intellectual disability in hospital.Child: care, health and development · 2020Article
- Simulation-Based Education for Staff Managing Aggression and Externalizing Behaviors in Children With Autism Spectrum Disorder in the Hospital Setting: Pilot and Feasibility Study Protocol for a Cluster Randomized Controlled Trial.JMIR research protocols · 2020Article
- Partnerships for safe care: A meta-narrative of the experience for the parent of a child with Intellectual Disability in hospital.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- Risk Factors for Emergency Department Utilization Among Adolescents with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2019Article
- Epidemiology of gastrostomy insertion for children and adolescents with intellectual disability.European journal of pediatrics · 2019Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo describe the hospitalisation patterns in children with intellectual disability (ID) and/or autism spectrum disorder (ASD) after the first year of life and compare with those unaffected.
designProspective cohort study using data linkage between health, ID and hospitalisation population-based datasets.
settingWestern Australia.
participants416 611 individuals born between 1983 and 1999 involving 1 027 962 hospital admission records. Five case categories were defined (mild/moderate ID, severe ID, biomedically caused ID, ASD with ID and ASD without ID) and compared with the remainder of children and young people. PRIMARY AND SECONDARY OUTCOME MEASURES: Time to event analysis was used to compare time hospitalisation and rate of hospitalisation between the different case-groups by estimating HR, accounting for birth year and preterm birth status.
resultsID and/or ASD were found to be associated with an increased risk of hospitalisation compared with the remainder of the population. The increase in risk was highest in those with severe ID and no ASD (HR=10.33, 95% CI 8.66 to 12.31). For those with ID of known biomedical cause or mild ID of unknown cause, the risk of hospitalisation was lower (HR=7.36, 95% CI 6.73 to 8.07 and HR=3.08, 95% CI 2.78 to 3.40, respectively). Those with ASDs had slightly increased risk (HR=2.82, 95% CI 2.26 to 3.50 for those with ID and HR=2.09, 95% CI 1.85 to 2.36 for those without ID).
conclusionsChildren with an ID or ASD experience an increased risk of hospitalisation after the first year of life which varied from 2 to 10 times that of the rest of the population. Findings can inform service planning or resource allocation for these children with special needs.
Identifiers
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Registered trials
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