Evidence map›Paper›PMID 23435715›Full record

ArticleJournal of genetic counseling2013

Promoting public awareness and engagement in genome sciences.

Susanne B Haga, Katie D Rosanbalm, Larry Boles, Genevieve M Tindall, Troy M Livingston, Julianne M O'Daniel

Registry-linked trialAbstract read
In one paragraph

Article in Journal of genetic counseling, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03548779 (North Carolina Genomic Evaluation by Next-generation Exome Sequencing, 2), which is not on this map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03548779 nacompletednot on this mapstarted 2018, after this paper: background citation

North Carolina Genomic Evaluation by Next-generation Exome Sequencing, 2

TypeinterventionalSponsorUniversity of North Carolina, Chapel HillRan2018 to 2024Enrolled548ConditionsEpilepsy, Seizure, Neuromuscular Diseases, Brain MalformationArmsPre-visit prep, usual care + exome seq
3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Parents' Understanding of Genetics and Heritability.Journal of genetic counseling · 2017
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Susanne B HagaInstitute for Genome Sciences & Policy, Duke University, 304 Research Drive, Durham, NC 27708, USA. susanne.haga@duke.edu
Katie D Rosanbalm
Larry Boles
Genevieve M Tindall
Troy M Livingston
Julianne M O'Daniel

Funding

Genome Diner: A strategy for community-researcher engagement in genome sciencesR03HG005040 · NHGRI · DUKE UNIVERSITY · PI HAGA, SUSANNE · 2008 to 2009
$77k
NHGRI NIH HHS NIH R03HG005040NHGRI NIH HHS R03 HG005040
6 · The paper itself

Abstract

Public understanding of genetic concepts and associated ethical and policy issues can enable informed deliberation and decision-making. Effective strategies for increasing public understanding involve providing forums incorporating the unique perspectives and attitudes of the public, while allowing opportunities to learn first-hand from scientists about genome research and related applications. Through a partnership between the Duke Institute for Genome Sciences & Policy (IGSP) and the Museum of Life and Science in Durham, NC, we developed and piloted a program aimed to bridge the concepts of formal (public school) and informal (community-based science museum) science learning with the experiential context of family and participatory learning. Called Genome Diner, we piloted the program with 40 genetic/genomic researchers, 76 middle school students and their parents (n = 83) from Durham, NC. Program impact was assessed via pre/post surveys for each participant group. Following participation, parents were significantly more likely to correctly interpret the implications of a genome research finding, and both students and parents indicated higher interest in research as well as higher confidence in accessing and understanding genome research. Genetic literacy of parents and students was not affected by participation in the program, likely due to the relatively high knowledge scores pre-Diner: 88.3 % and 78.5 %, respectively. The interactive format of Genome Diner provided an opportunity for students and parents to explore and discuss interests and issues about genomic research alongside genome scientists, positively influencing attitudes toward genetic research and researchers themselves. These interactions are critical for maintaining public interest and knowledge about genomic research and applications.

Indexed as

AwarenessBiomedical ResearchGenome, HumanPublic SectorHumans

Identifiers

PMID23435715
PMCPMC3688701

What OpenQuestion holds

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Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.