ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Is perceived patient involvement in mental health care associated with satisfaction and empowerment?
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
38 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Humanization of Care: Key Elements Identified by Patients, Caregivers, and Healthcare Providers. A Systematic Review.The patient · 2019Pooled it
- Information and decision-making needs among people with mental disorders: a systematic review of the literature.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- "MyLogbook-I Know My Way Around": A Psychological Therapy Program to Enhance Health Literacy and Positive Emotional Adjustment in Pediatric Oncology.Psycho-oncology · 2026Trial
- Family Caregiver Communication and Perceptions of Involvement in Hospice Care.Journal of palliative medicine · 2024Trial
- A Simple Goal Elicitation Tool Improves Shared Decision Making in Outpatient Orthopedic Surgery: A Randomized Controlled Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2020Trial
- Collaborative Development of a Self-Tracking Assisted Psychotherapy Treatment Concept for Refugees With Complex Posttraumatic Stress Disorder: Participatory Action Research.JMIR formative research · 2025Article
- What Patients Don't Say and Physicians Don't Ask: A Needs Assessment in Myasthenia Gravis Integrating Patient and Healthcare Professional Perspectives.Neurology and therapy · 2025Article
- Users remain overlooked: Shared decision-making processes for people with anxiety disorders.Journal of psychiatric and mental health nursing · 2025Article
- Persons suffering from severe and persistent mental illness with a persistent death wish: A cross-sectional study of the Reakiro care model.PLOS mental health · 2025Article
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- Good to know - This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research.Cancer reports (Hoboken, N.J.) · 2023Article
- Observation tool to measure patient-centered behaviors on rounds in an academic medical center.Medical education online · 2022Article
- Can online health information sources really improve patient satisfaction?Frontiers in public health · 2022Article
- Empowering Patients and Supporting Health Care Providers-New Avenues for High Quality Care and Safety.International journal of environmental research and public health · 2021Article
- Online Reviews of Mental Health Treatment Facilities: Narrative Themes Associated With Positive and Negative Ratings.Psychiatric services (Washington, D.C.) · 2021Article
- An International Pilot Study of Self-Reported Quality of Life in Outpatient and Inpatient Mental Health Settings.Frontiers in psychiatry · 2021Article
- Visual and Personalized Quality of Life Assessment App for People With Severe Mental Health Problems: Qualitative Evaluation.JMIR mental health · 2020Article
- Patients' perception of user involvement in psychiatric outpatient treatment: Associations with patient characteristics and satisfaction.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Quality of Life of People with Severe Mental Health Problems: Testing an Interactive Model.International journal of environmental research and public health · 2020Article
- Communities, health-care organizations and the contingencies and contradictions of engagement: A case study from Chile.Health expectations : an international journal of public participation in health care and health policy · 2020Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients increasingly assume active roles in their mental health care. While there is a growing interest in patient involvement and patient-reported outcomes, there is insufficient research on the outcomes of patient involvement.
objectiveThe research questions in this study are as follows: 'To what extent is perceived patient involvement associated with satisfaction and empowerment?'; 'What is the nature of the relationship between satisfaction and empowerment?'; and 'To what extent are background variables associated with satisfaction and empowerment?'. We assumed that a higher degree of patient involvement is associated with higher satisfaction and empowerment scores and that satisfaction and empowerment are positively associated. DESIGN, SETTING AND
participantsData were gathered using surveys of 111 patients of 36 multidisciplinary care networks for persons with serious and persistent mental illness. MAIN VARIABLES STUDIED AND
main outcome measuresDemographic characteristics, patient involvement and satisfaction were measured using a new questionnaire. Empowerment was assessed using the Dutch Empowerment Scale. Descriptive, univariate (Pearson's r and independent-samples t-tests), multivariate (hierarchical forced entry regression) and mixed-model analyses were conducted.
resultsThe hypotheses of positive associations between patient involvement, satisfaction and empowerment are confirmed. The demographics are not significantly related to satisfaction or empowerment, except for gender. Men reported higher empowerment scores than did women. DISCUSSION AND
conclusionsMaking patient involvement a reality is more than just an ethical imperative. It provides an opportunity to enhance patient-reported outcomes such as satisfaction and empowerment. Future research should focus on the nature of the association between satisfaction and empowerment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.