ArticleJournal of community genetics2013
"You don't have to keep everything on paper": African American women's use of family health history tools.
Article in Journal of community genetics, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Leveraging Health Information Technology to Collect Family Cancer History: A Systematic Review and Meta-Analysis.JCO clinical cancer informatics · 2021Pooled it
- Developing and assessing a kin keeping scale with application to identifying central influencers in African American family networks.Journal of community genetics · 2023Article
- Prevalence of Americans reporting a family history of cancer indicative of increased cancer risk: Estimates from the 2015 National Health Interview Survey.Preventive medicine · 2022Article
- Article
- Applying theory to characterize impediments to dissemination of community-facing family health history tools: a review of the literature.Journal of community genetics · 2020Review
- Blending Insights from Implementation Science and the Social Sciences to Mitigate Inequities in Screening for Hereditary Cancer Syndromes.International journal of environmental research and public health · 2019Article
- A Bayesian hierarchical logistic regression model of multiple informant family health histories.BMC medical research methodology · 2019Article
- Structural and Contextual Patterns in Family Health History Knowledge among African American Adults: A Mixed-Methods Social Network Analysis Study.Journal of social structure : JOSS · 2019Article
- Racial differences in family health history knowledge of type 2 diabetes: exploring the role of interpersonal mechanisms.Translational behavioral medicine · 2018Article
- Social determinants of family health history collection.Journal of community genetics · 2016Article
- Community-Based Family Health History Education: The Role of State Health Agencies in Engaging Medically Underserved Populations in Understanding Genomics and Risk of Chronic Disease.Healthcare (Basel, Switzerland) · 2015Article
- Increasing participation in genomic research and biobanking through community-based capacity building.Journal of genetic counseling · 2015Article
- The context of collecting family health history: examining definitions of family and family communication about health among African American women.Journal of health communication · 2015Article
- Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2015Article
- Perceptions of family history and genetic testing and feasibility of pedigree development among African Americans with hypertension.European journal of cardiovascular nursing · 2015Article
- Collecting Family Health History using an Online Social Network: a Nationwide Survey among Potential Users.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Little is known about African American women's collection of family health history (FHH) information and use of FHH tools. Most FHH research has investigated tools that use a biomedical paradigm, but other kinds of tools, such as those that include information about family social context, have been developed for use in diverse populations. Using mixed methods, we interviewed 32 African American women about behavioral steps to collecting FHH, family communication about health, and reactions to a biomedical FHH tool. Participants chose one of two FHH tools to take home. A follow-up call three weeks later assessed tool use. Many participants expressed support for writing down FHH information, but at baseline few had done so; most participants who had collected FHH information had done so verbally. Participants reacted positively to the biomedical FHH tool used during the interview, with many saying it allowed them to see patterns in their FHH. At follow-up, 67 % reported using their FHH tool, primarily to promote discussion among family members; only 32 % used the tool to write down FHH information. Although participants thought collecting FHH information was important and had positive reactions to both tools, the majority did not use the tools to write down information and instead collected FHH informally. These findings underline the importance of separating the components of FHH collection behaviors to analyze the steps used in FHH creation. Practitioners should consider additional methods of encouraging patients to create written FHHs in order to share the information with health care providers.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.