ArticleThe journal of sexual medicine2013
Development of the NIH PROMIS ® Sexual Function and Satisfaction measures in patients with cancer.
Article in The journal of sexual medicine, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 4 registered trials, which are not on this map. Cited by 93 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Patient Activation to Address Chronic Pain and Opioid Management in Primary Care
Comprehensive Outcomes for After Cancer Health (COACH): the Feasibility and Impact of an MHealth Augmented Coaching Program for Self-Management in Cancer Survivors
Identifying Opportunities for Prevention of Adverse Outcomes Following Female Genital
Sexual Health and Breast Cancer: Developing Appropriate Education for Women Going Through Treatment
Who cites it
93 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Supportive care interventions in hematopoietic stem cell transplantation: a systematic review and meta-analysis.Blood advances · 2026Pooled it
- Patient-reported outcome measures and surgery for Crohn's disease: systematic review.BJS open · 2023Pooled it
- Sexual problems in patients with hematological diseases: a systematic literature review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Self-Reported Sexual Function Measures Administered to Female Cancer Patients: A Systematic Review, 2008-2014.Journal of psychosocial oncology · 2015Pooled it
- Examining recruitment differences by race, ethnicity, and age to a decentralized trial of an internet-delivered intervention for sexual health after breast cancer: the WF-2202 SHINE trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Trial
- Starting the Conversation: randomized pilot trial of an intervention to promote effective clinical communication about sexual health for gynecologic cancer survivors.Journal of cancer survivorship : research and practice · 2024Trial
- Evaluating sensitive symptoms in young adult cancer survivors: acceptability of suicidal ideation and sexual health items across administration modes.Journal of cancer survivorship : research and practice · 2024Trial
- Randomized Controlled Phase II Evaluation of Two Dose Levels of Bupropion Versus Placebo for Sexual Desire in Female Cancer Survivors: NRG-CC004.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2022Trial
- Correspondence Between Clinician Ratings of Vulvovaginal Health and Patient-Reported Sexual Function After Cancer.The journal of sexual medicine · 2021Trial
- Online yoga in myeloproliferative neoplasm patients: results of a randomized pilot trial to inform future research.BMC complementary and alternative medicine · 2019Trial
- Physical characteristics not psychological state or trait characteristics predict motion during resting state fMRI.Scientific reports · 2019Trial
- Trial
- Psychometric properties and outcomes of the PROMIS Sexual Function and Satisfaction measures in individuals with congenital bleeding disorders.Research and practice in thrombosis and haemostasis · 2026Article
- Role of Sexuality in the Quality of Life of Palliative Care Patients: A Narrative Review.Cureus · 2026Review
- Multidisciplinary Approach to Sexual Dysfunction in Persons With Lung Cancer-Spanish Lung Cancer Group Expert Consensus Statement.JTO clinical and research reports · 2026Article
- Provider-Engaged Development of a Sexual Dysfunction Screening Approach for Adolescents and Young Adult Childhood Cancer Survivors: Iterative Co-Design Study.JMIR formative research · 2026Article
- Incorporating patients' input in the development and validation of patient-reported outcome measures in oncology: a comprehensive scoping review.Health and quality of life outcomes · 2026Review
- Patient reported outcome measures: their evolution and expansion in urology.The Canadian journal of urology · 2025Review
- Conceptual Frameworks Linking Sexual Health to Physical, Mental, and Interpersonal Well-Being: A Comprehensive Systematic Review and Meta-Analysis.Behavioral sciences (Basel, Switzerland) · 2025Review
- Sexual Well-Being After Bariatric Surgery Assessed with New Sexual Satisfaction Scale: A Case-Matched Study of Men and Women.Obesity surgery · 2025Article
33 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
introductionWe describe the development and validation of the Patient-Reported Outcomes Measurement Information System(®) Sexual Function and Satisfaction (PROMIS(®) SexFS; National Institutes of Health) measures, version 1.0, for cancer populations.
aimTo develop a customizable self-report measure of sexual function and satisfaction as part of the U.S. National Institutes of Health PROMIS Network.
methodsOur multidisciplinary working group followed a comprehensive protocol for developing psychometrically robust patient-reported outcome measures including qualitative (scale development) and quantitative (psychometric evaluation) development. We performed an extensive literature review, conducted 16 focus groups with cancer patients and multiple discussions with clinicians, and evaluated candidate items in cognitive testing with patients. We administered items to 819 cancer patients. Items were calibrated using item-response theory and evaluated for reliability and validity.
main outcome measuresThe PROMIS SexFS measures, version 1.0, include 81 items in 11 domains: Interest in Sexual Activity, Lubrication, Vaginal Discomfort, Erectile Function, Global Satisfaction with Sex Life, Orgasm, Anal Discomfort, Therapeutic Aids, Sexual Activities, Interfering Factors, and Screener Questions.
resultsIn addition to content validity (patients indicate that items cover important aspects of their experiences) and face validity (patients indicate that items measure sexual function and satisfaction), the measure shows evidence for discriminant validity (domains discriminate between groups expected to be different) and convergent validity (strong correlations between scores on PROMIS and scores on conceptually similar older measures of sexual function), as well as favorable test-retest reliability among people not expected to change (interclass correlations from two administrations of the instrument, 1 month apart).
conclusionsThe PROMIS SexFS offers researchers a reliable and valid set of tools to measure self-reported sexual function and satisfaction among diverse men and women. The measures are customizable; researchers can select the relevant domains and items comprising those domains for their study.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.