ArticleHealth affairs (Project Hope)2013
A proposed 'health literate care model' would constitute a systems approach to improving patients' engagement in care.
Article in Health affairs (Project Hope), 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 143 papers, 6 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
143 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Health literacy-sensitive self-management interventions for chronic obstructive pulmonary disease: a systematic review and meta-analysis.NPJ primary care respiratory medicine · 2026Pooled it
- Effectiveness of Interventions to Improve Digital Health Literacy in Forced Migrant Populations: Mixed Methods Systematic Review.Journal of medical Internet research · 2025Pooled it
- Cystic Fibrosis Newborn Screening: A Systematic Review-Driven Consensus Guideline from the United States Cystic Fibrosis Foundation.International journal of neonatal screening · 2025Guideline
- A conceptual model of functional health literacy to improve chronic airway disease outcomes.BMC public health · 2021Pooled it
- Health Literacy in Surgery.Health literacy research and practice · 2020Pooled it
- Predicting cancer prognosis using interactive online tools: a systematic review and implications for cancer care providers.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2013Pooled it
- Comparative adherence to weekly oral and quarterly intravenous bisphosphonates among patients with limited heath literacy who sustained distal radius fractures.Journal of bone and mineral metabolism · 2018Trial
- Feasibility of an ED-to-Home Intervention to Engage Patients: A Mixed-Methods Investigation.The western journal of emergency medicine · 2017Trial
- Using Health Information Technology to Foster Engagement: Patients' Experiences with an Active Patient Health Record.Health communication · 2017Trial
- Earning Trust Before the Crisis: Health Literacy and Communication Readiness in Healthcare Systems.Healthcare (Basel, Switzerland) · 2026Article
- Health literacy reductionism: when individual deficits become the default explanation.Health promotion international · 2026Article
- Patient Involvement as Understood by Healthcare Professionals: A Multi-Methods Study in a Danish University Hospital.Scandinavian journal of caring sciences · 2026Article
- Patient Understanding of Health Care Practitioner Titles-A California Survey.Dermatologic surgery : official publication for American Society for Dermatologic Surgery [et al.] · 2026Article
- Mental health literacy among family nurses in Poland: a cross-sectional study.Frontiers in public health · 2026Article
- Linkage to and retention in chronic care among patients diagnosed with hypertension, diabetes, or HIV in DIMAMO PHRC clinics, South Africa.PLOS global public health · 2026Article
- The ethics of simplification: balancing patient autonomy, comprehension, and accuracy in AI-generated radiology reports.BMC medical ethics · 2025Article
- Association between caregiver health literacy and patient characteristics in pediatric new onset diabetes mellitus.Public health · 2025Article
- Barriers to the Development of Health Literacy in Iran's Health System: A Qualitative Study.Health literacy research and practice · 2025Article
- From Burden to Empowerment. Patient-Reported Influencing Factors on Participation in Shared Decision Making in Oncology, a Meta-Study.Psycho-oncology · 2025Review
- Patient-centered evaluation of integrated care and health equity: evidence from county medical alliances in Henan province.International journal for equity in health · 2025Article
83 more citing papers are in PubMed but not listed here.
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4 authors.
Funding
Abstract
Improving health outcomes relies on patients' full engagement in prevention, decision-making, and self-management activities. Health literacy, or people's ability to obtain, process, communicate, and understand basic health information and services, is essential to those actions. Yet relatively few Americans are proficient in understanding and acting on available health information. We propose a Health Literate Care Model that would weave health literacy strategies into the widely adopted Care Model (formerly known as the Chronic Care Model). Our model calls for first approaching all patients with the assumption that they are at risk of not understanding their health conditions or how to deal with them, and then subsequently confirming and ensuring patients' understanding. For health care organizations adopting our model, health literacy would then become an organizational value infused into all aspects of planning and operations, including self-management support, delivery system design, shared decision-making support, clinical information systems to track and plan patient care, and helping patients access community resources. We also propose a measurement framework to track the impact of the new Health Literate Care Model on patient outcomes and quality of care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.