ArticlePain management nursing : official journal of the American Society of Pain Management Nurses2014
Care seeking for pain in young adults with sickle cell disease.
Article in Pain management nursing : official journal of the American Society of Pain Management Nurses, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Stigma of Sickle Cell Disease: A Systematic Review.Issues in mental health nursing · 2018Pooled it
- The use of abstract animations and a graphical body image for assessing pain outcomes among adults with sickle cell disease.The journal of pain · 2025Trial
- Feasibility of In-Home Virtual Reality for Chronic Pain in Sickle Cell Disease.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2024Trial
- Chronic pain in the aging adult with sickle cell disease.Frontiers in pain research (Lausanne, Switzerland) · 2026Review
- Provider Implicit Racial Bias in Pediatric Sickle Cell Disease.Journal of racial and ethnic health disparities · 2025Article
- Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.Western journal of nursing research · 2023Article
- Sickle cell disease and adolescents' perspectives on self-care management resources.Health care transitions · 2023Article
- Not Just a Pain: A Medical Simulation Case About Biased Communication and Osteomyelitis in Pediatric Sickle Cell Anemia.MedEdPORTAL : the journal of teaching and learning resources · 2023Review
- Patient and Caregiver Perspectives on Care-Seeking During a Vaso-Occlusive Crisis in Sickle Cell Disease: Results from Qualitative Interviews in Canada.Patient preference and adherence · 2023Article
- Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study.International journal of environmental research and public health · 2022Article
- "Into the Lion's Den": COVID-19 Experiences of Black Adults with Sickle Cell Disease.Qualitative health research · 2022Article
- Confronting Racism in Pain Research: A Call to Action.The journal of pain · 2022Article
- Emergency Department Utilization for Patients Living With Sickle Cell Disease: Psychosocial Predictors of Health Care Behaviors.Annals of emergency medicine · 2020Article
- Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research.BMC health services research · 2019Article
- A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease.Journal of the National Medical Association · 2019Article
- Twelve tips for teaching a comprehensive disease-focused course with a global perspective: A sickle cell disease example.Medical teacher · 2019Article
- Understanding the Self-Management Practices of Young Adults with Sickle Cell Disease.Journal of sickle cell disease and hemoglobinopathies · 2017Article
- Article
- Does Attendance at a Sickle Cell Educational Conference Improve Clinician Knowledge and Attitude Toward Patients with Sickle Cell Disease?Pain management nursing : official journal of the American Society of Pain Management Nurses · 2016Article
- Perceptions of young adults with sickle cell disease concerning their disease experience.Journal of advanced nursing · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
In individuals with sickle cell disease (SCD), recognizing the cues to an acute pain episode and responding appropriately are important. The purpose of this mixed-methods pilot study is to identify preliminary factors that influence care seeking for pain in young adults with SCD. Responses were received from 69 young adults with SCD, age 18-35 years. The majority of respondents (88%) wait until the pain intensity is an average of 8.7 (± 1.2) on a scale of 1 to 10 before seeking care. Prominent themes influencing care seeking for pain include: trying to treat pain at home, avoiding the emergency department because of past treatment experiences, the desire to avoid admission to the hospital, and the importance of time in the lives of the young adults with SCD. Young adults with SCD need additional support from family and healthcare providers in order to make timely, appropriate decisions regarding care seeking.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.