ReviewThe British journal of general practice : the journal of the Royal College of General Practitioners2013
From forgetfulness to dementia: clinical and commissioning implications of diagnostic experiences.
Review in The British journal of general practice : the journal of the Royal College of General Practitioners, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 3 syntheses or guidelines pooled it, 74 citations in OpenAlex.
- Time to Diagnosis in Dementia: A Systematic Review With Meta-Analysis.International journal of geriatric psychiatry · 2025Pooled it
- Pooled it
- Identifying patterns of communication in patients attending memory clinics: a systematic review of observations and signs with potential diagnostic utility.The British journal of general practice : the journal of the Royal College of General Practitioners · 2018Pooled it
- A Qualitative Study to Characterize the Experiences of Patients and Caregivers With Dementia Diagnostic Disclosure Communication and Care Planning.Journal of geriatric psychiatry and neurology · 2026Article
- Methodological adaptations for applying the Harmonised Cognitive Assessment Protocol diagnostic algorithm in the Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA-HCAP).BMC research notes · 2026Article
- Informant accuracy of IQCODE, AD8 and GPCOGi for diagnosis of dementia: does your friend know best?BMC primary care · 2025Article
- Clinical judgment of GPs for the diagnosis of dementia: a diagnostic test accuracy study.BJGP open · 2021Article
- European Academy of Neurology/European Alzheimer's Disease Consortium position statement on diagnostic disclosure, biomarker counseling, and management of patients with mild cognitive impairment.European journal of neurology · 2021Article
- Experiencing dementia: How does assessment of cognition and language relate to daily life?Dementia (London, England) · 2021Article
- Diagnostic experience reported by caregivers of patients with frontotemporal degeneration.Neurology. Clinical practice · 2020Article
- Promoting Independence in Dementia (PRIDE): protocol for a feasibility randomised controlled trial.Trials · 2019Article
- Clinician-patient communication during the diagnostic workup: The ABIDE project.Alzheimer's & dementia (Amsterdam, Netherlands) · 2019Article
- The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.Clinical interventions in aging · 2019Article
- Coping with transitions in life: a four-year longitudinal narrative study of single younger people with dementia.Journal of multidisciplinary healthcare · 2019Article
- Towards improving diagnosis of memory loss in general practice: TIMeLi diagnostic test accuracy study protocol.BMC family practice · 2016Article
- Timely Diagnosis for Alzheimer's Disease: A Literature Review on Benefits and Challenges.Journal of Alzheimer's disease : JAD · 2016Review
- Clinical history for diagnosis of dementia in men: Caerphilly Prospective Study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2015Article
- Care pathways for dementia: current perspectives.Clinical interventions in aging · 2014Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 4 institutions in 2 countries.
Funding
Abstract
backgroundThe National Dementia Strategy in England stressed the importance of earlier diagnosis of dementia. In-depth knowledge of the experiences of patients using such services remains an evidence gap.
aimTo increase understanding of the experiences of people developing dementia and of their carers, to inform practice and decision making. DESIGN AND
settingA retrospective and prospective qualitative interview study of participants recruited from four memory clinics in London, the north-west and the north-east of England.
methodPurposive sampling was used to recruit 27 individuals with memory problems and 26 supporters and carers. Interviews explored referral pathways, assessment processes, disclosure of the diagnosis, experiences of being prescribed medication to help with symptoms, and issues of risk and decision making.
resultsFew participants experienced the process of memory assessment as patient centred. Where assessment processes were lengthy and drawn out, participants experienced considerable uncertainty. Many experienced tests and assessments as distressing, sometimes in settings that were perceived as alarming or potentially stigmatising by association. Information provision and communication were variable and practitioners were not always thought to help people to make sense of their experiences.
conclusionThe transition from the early stages of cognitive impairment is not straightforward. There is potentially much uncertainty and waiting. Primary care practitioners may be better able to provide tailored support to individuals and their carers during this time if they are aware of what patients are anticipating and are informed about the diagnostic 'journey' by the insights of those who have experienced it.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.