ArticleBMC nephrology2013
Selecting renal replacement therapies: what do African American and non-African American patients and their families think others should know? A mixed methods study.
Article in BMC nephrology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 19 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Providing Resources to Enhance Patients' Readiness to Make Decisions About Kidney Disease: Partnering to Break the News, Review All Options, Weigh Pros and Cons (PREPARE NOW)
Reducing Barriers in Access to Kidney Transplantation: Implementing the "Explore Transplant" Education Program to Increase Patient Knowledge and to Facilitate Informed Decision Making- A Pilot Study
Who cites it
19 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Decisional Conflicts in Kidney Replacement Therapy for Patients With Grade 5 Chronic Kidney Disease: A Qualitative Meta-Synthesis.Journal of renal care · 2025Pooled it
- Factors promoting shared decision-making in renal replacement therapy for patients with end-stage kidney disease: systematic review and qualitative meta-synthesis.International urology and nephrology · 2022Pooled it
- Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.BMJ open · 2018Pooled it
- Comparison of life participation activities among adults treated by hemodialysis, peritoneal dialysis, and kidney transplantation: a systematic review.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2013Pooled it
- Protocol of a cluster randomized trial of an educational intervention to increase knowledge of living donor kidney transplant among potential transplant candidates.BMC nephrology · 2013Trial
- Lived Experiences of Older Adults with Advanced CKD and Their Caregivers: A Qualitative Study Uncovering Risk and Resilience Dynamics.Kidney360 · 2025Article
- A convergent mixed methods to study registration on kidney transplantation waiting list refusal by women and men on dialysis in France.Scientific reports · 2024Article
- Improving Caregiver Burden by a Peer-Led Mentoring Program for Caregivers of Patients With Chronic Kidney Disease: Randomized Controlled Trial.Journal of patient experience · 2022Article
- "I Wish Someone Had Told Me That Could Happen": A Thematic Analysis of Patients' Unexpected Experiences With End-Stage Kidney Disease Treatment.Journal of patient experience · 2020Article
- Review
- Primary care physicians' perceptions of barriers and facilitators to management of chronic kidney disease: A mixed methods study.PloS one · 2019Article
- Everybody needs a cheerleader to get a kidney transplant: a qualitative study of the patient barriers and facilitators to kidney transplantation in the Southeastern United States.BMC nephrology · 2016Article
- iChoose Kidney: A Clinical Decision Aid for Kidney Transplantation Versus Dialysis Treatment.Transplantation · 2016Article
- African American kidney transplant patients' perspectives on challenges in the living donation process.Progress in transplantation (Aliso Viejo, Calif.) · 2015Article
- Causes for Withdrawal in an Urban Peritoneal Dialysis Program.International journal of nephrology · 2015Article
- Actual and perceived knowledge of kidney transplantation and the pursuit of a live donor.Transplantation · 2014Article
- Concerns regarding the financial aspects of kidney transplantation: perspectives of pre-transplant patients and their family members.Clinical transplantation · 2014Article
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Corrections and comments
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Authors and funding
13 authors.
Funding
Abstract
backgroundLittle is known regarding the types of information African American and non-African American patients with chronic kidney disease (CKD) and their families need to inform renal replacement therapy (RRT) decisions.
methodsIn 20 structured group interviews, we elicited views of African American and non-African American patients with CKD and their families about factors that should be addressed in educational materials informing patients' RRT selection decisions. We asked participants to select factors from a list and obtained their open-ended feedback.
resultsTen groups of patients (5 African American, 5 non-African American; total 68 individuals) and ten groups of family members (5 African American, 5 non-African American; total 62 individuals) participated. Patients and families had a range (none to extensive) of experiences with various RRTs. Patients identified morbidity or mortality, autonomy, treatment delivery, and symptoms as important factors to address. Family members identified similar factors but also cited the effects of RRT decisions on patients' psychological well-being and finances. Views of African American and non-African American participants were largely similar.
conclusionsEducational resources addressing the influence of RRT selection on patients' morbidity and mortality, autonomy, treatment delivery, and symptoms could help patients and their families select RRT options closely aligned with their values. Including information about the influence of RRT selection on patients' personal relationships and finances could enhance resources' cultural relevance for African Americans.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.