ArticleJournal of neurology2013
The prevalence and characteristics of patients with classic locked-in syndrome in Dutch nursing homes.
Article in Journal of neurology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- Optimal sensor set for MEG-based spontaneous and intended speech decoding toward practical communication.Frontiers in human neuroscience · 2026Article
- Invasive Brain-Computer Interface for Communication: A Scoping Review.Brain sciences · 2025Review
- Neural Decoding of Spontaneous Overt and Intended Speech.Journal of speech, language, and hearing research : JSLHR · 2024Article
- Update on How to Approach a Patient with Locked-In Syndrome and Their Communication Ability.Brain sciences · 2024Review
- Clinical and ethical challenges in decision-making for patients with disorders of consciousness and locked-in syndrome from Chinese neurologists' perspectives.Therapeutic advances in neurological disorders · 2024Article
- Demographic, Medical, and Clinical Characteristics of a Population-Based Sample of Patients With Long-lasting Locked-In Syndrome.Neurology · 2023Article
- Understanding the Psychological Well-being of Patients With Locked-in Syndrome: A Scoping Review.Cureus · 2023Article
- Locked-in syndrome revisited.Therapeutic advances in neurological disorders · 2023Review
- Methodological Recommendations for Studies on the Daily Life Implementation of Implantable Communication-Brain-Computer Interfaces for Individuals With Locked-in Syndrome.Neurorehabilitation and neural repair · 2022Article
- Stimulation-related modifications of evolving functional brain networks in unresponsive wakefulness.Scientific reports · 2022Article
- The prevalence and determinants of inappropriate sexual behaviour in people with acquired brain injury in nursing homes.Journal of advanced nursing · 2021Observational
- Review
- MEG Sensor Selection for Neural Speech Decoding.IEEE access : practical innovations, open solutions · 2020Article
- Decoding Imagined and Spoken Phrases From Non-invasive Neural (MEG) Signals.Frontiers in neuroscience · 2020Article
- Prevalence and characteristics of neuropsychiatric symptoms, quality of life and psychotropics in people with acquired brain injury in long-term care.Journal of advanced nursing · 2019Observational
- Estimated Prevalence of the Target Population for Brain-Computer Interface Neurotechnology in the Netherlands.Neurorehabilitation and neural repair · 2017Article
- A rare sequela of acute disseminated encephalomyelitis.Case reports in neurological medicine · 2014Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
To establish the point prevalence and characteristics of patients with locked-in syndrome (LIS), particularly of the classic type, residing in Dutch nursing homes, a cross-sectional survey of Dutch nursing homes was conducted. The classic form of LIS was defined according to the criteria of the American Congress of Rehabilitation Medicine (1995). All Dutch long-term care organisations (n = 187) were asked if they had any patients with classic LIS as of December 5, 2011. The treating Elderly Care Physicians were then contacted to provide patient characteristics. Of all organisations, 91.4% responded, and 11 organisations reported a total of 12 patients. After analysing the questionnaires, it was determined that ten patients had LIS, and two patients were characterised with vegetative state. Only two patients met the criteria for classic LIS, while six patients showed partial LIS. One of these patients was admitted to the nursing home after December 5, 2011, and was therefore, excluded. LIS without accompanying pontine lesion was observed in the remaining two patients. For the first time, the prevalence of classic LIS has been established at 0.7/10,000 somatic nursing home beds in all Dutch long-term care organisations. Possible explanations for this low prevalence could be the Dutch provision of home care or the influence of end-of-life decisions, such as euthanasia and withholding or withdrawing all medical treatment, including artificial nutrition and hydration. These alternate outcomes should be explored in further studies.
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Registered trials
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