ArticleJournal of autism and developmental disorders2013
Ethical considerations in conducting research on autism spectrum disorders in low and middle income countries.
Article in Journal of autism and developmental disorders, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020Pooled it
- Integrating Gut-Brain Axis: Exploring the Neurogastrointestinal Interactions and Therapeutic Potentials in Autism Spectrum Disorder.Endocrine, metabolic & immune disorders drug targets · 2026Review
- Flourishing and Functional Difficulties among Autistic Youth: A Confirmatory Factor Analysis.Children (Basel, Switzerland) · 2024Article
- Overview of Services for Autism Spectrum Disorders (ASD) in Low- and Middle-Income Countries (LMICs) and among Immigrants and Minority Groups in High-Income Countries (HICs).Brain sciences · 2022Article
- The Psychometric Properties of the Gilliam Autism Rating Scale (GARS-3) with Kurdish Samples of Children with Developmental Disabilities.Children (Basel, Switzerland) · 2022Article
- The research landscape of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND)-a comprehensive scoping review.Journal of neurodevelopmental disorders · 2022Article
- Changes in Knowledge on the Signs of Autism in Young Children (11-30 Months) among Female Community Health Volunteers in Nepal.Journal of autism and developmental disorders · 2022Article
- Early Detection of Autism Spectrum Disorders (ASD) with the Help of Data Mining Tools.BioMed research international · 2022Article
- The resilience of parents who have children with autism spectrum disorder in China: a social culture perspective.International journal of developmental disabilities · 2022Article
- Parents' Experience in Children's Friendship Training Programme for Their Children with Autism Spectrum Disorder: A Qualitative Inquiry.Children (Basel, Switzerland) · 2021Article
- Ethical issues in genomics research on neurodevelopmental disorders: a critical interpretive review.Human genomics · 2021Review
- A Long-Term Engagement with a Social Robot for Autism Therapy.Frontiers in robotics and AI · 2021Article
- The future of autism: Global & local achievements & challenges.The Indian journal of medical research · 2020Article
- An Expert Discussion on Autism in Adulthood in Low- and Middle-Income Countries.Autism in adulthood · 2019Article
- Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India.Journal of autism and developmental disorders · 2019Article
- Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis.Journal of autism and developmental disorders · 2019Article
- The importance of context in early autism intervention: A qualitative South African study.Autism : the international journal of research and practice · 2018Article
- Influence of Community-Level Cultural Beliefs about Autism on Families' and Professionals' Care for Children.Transcultural psychiatry · 2018Article
- Risk and Resilience Among Mothers and Fathers of Primary School Age Children With ASD in Malaysia: A Qualitative Constructive Grounded Theory Approach.Frontiers in psychology · 2018Article
- Cultural considerations for informed consent in paediatric research in low/middle-income countries: a scoping review.BMJ paediatrics open · 2018Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.