ArticlePhysiotherapy Canada. Physiotherapie Canada2012
The path to self-management: a qualitative study involving older people with multiple sclerosis.
Article in Physiotherapy Canada. Physiotherapie Canada, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A metasynthesis of factors affecting self-management of chronic illness.Journal of advanced nursing · 2016Pooled it
- Symptom changes in multiple sclerosis following psychological interventions: a systematic review.BMC neurology · 2014Pooled it
- Empowering yet challenging: managing multiple sclerosis in the workplace-an interview study.Frontiers in public health · 2026Article
- Article
- Unfolding biographies-a participatory narrative study on how older adults with multiple sclerosis make sense of and manage their everyday lives.BMC geriatrics · 2023Article
- Article
- 'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.Health expectations : an international journal of public participation in health care and health policy · 2020Review
- The impact of resilience on healthy aging with multiple sclerosis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- The Relational Impact of Multiple Sclerosis: An Integrative Review of the Literature Using a Cognitive Analytic Framework.Journal of clinical psychology in medical settings · 2017Review
- Factors Associated with Poor Sleep in Older Adults with Multiple Sclerosis.International journal of behavioral medicine · 2017Article
- Exploring stroke survivors' and physiotherapists' views of self-management after stroke: a qualitative study in the UK.BMJ open · 2017Article
- Healthy Aging from the Perspectives of 683 Older People with Multiple Sclerosis.Multiple sclerosis international · 2016Article
- Article
- Predictors of chronic cerebrospinal venous insufficiency procedure use among older people with multiple sclerosis: a national case-control study.BMC health services research · 2015Article
- Predictors of exercise participation in ambulatory and non-ambulatory older people with multiple sclerosis.PeerJ · 2015Article
- The Canadian survey of health, lifestyle and ageing with multiple sclerosis: methodology and initial results.BMJ open · 2014Article
- Lay and health care professional understandings of self-management: A systematic review and narrative synthesis.SAGE open medicine · 2014Review
- Drawing on related knowledge to advance multiple sclerosis falls-prevention research.International journal of MS care · 2014Article
- The multiple sclerosis self-management scale: clinicometric testing.International journal of MS care · 2014Article
- Clinician's Commentary on Ploughman et al.(1).Physiotherapy Canada. Physiotherapie Canada · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis qualitative study sought to explore older people's experience of ageing with multiple sclerosis (MS) and to describe the natural history of self-management from their points of view.
methodsEighteen people over age 55 and living with MS for at least 20 years were recruited from an MS clinic and rehabilitation outpatient records. Interviews (60-80 min), using open-ended questions, explored participants' lifelong experiences of MS. Following interview transcription, data were coded and analyzed; themes, subthemes, and their relationships were described based on consensus.
resultsParticipants recounted their diagnosis process, their life experience with MS, and how they eventually accepted their disease, adapted, and moved toward self-management. The findings included vivid descriptions of social relationships, health care interactions, overcoming barriers, and the emotions associated with living with MS. A conceptual model of phases of self-management, from diagnosis to integration of MS into a sense of self, was developed.
conclusionsStudy participants valued self-management and described its phases, facilitators, and inhibitors from their points of view. Over years and decades, learning from life experiences, trial and error, and interactions with health care professionals, participants seemed to consolidate MS into their sense of self. Self-determination, social support, strong problem-solving abilities, and collaborative relationships with health professionals aided adaptation and coping. Findings from this study make initial steps toward understanding how MS self-management evolves over the life course and how self-management programmes can help people with MS begin to manage wellness earlier in their lives.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.