Evidence map›Paper›PMID 23269778›Full record

ArticleOncology nursing forum2013

Capturing treatment decision making among patients with solid tumors and their caregivers.

Randy A Jones, Richard Steeves, Mary E Ropka, Patricia Hollen

Abstract readMulticenter Study
In one paragraph

Article in Oncology nursing forum, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Trial
  5. Article
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  10. A theory-based decision aid for patients with cancer: results of feasibility and acceptability testing of DecisionKEYS for cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2013
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Randy A JonesSchool of Nursing, University of Virginia, Charlottesville, VA, USA. raj9c@virginia.edu
Richard Steeves
Mary E Ropka
Patricia Hollen

Funding

Women's Oncology Program - WONP30CA044579 · NCI · UNIVERSITY OF VIRGINIA CHARLOTTESVILLE · PI Thomas P. Loughran · 1987 to 2026
$72.1M
Supporting Decisions In Inherited Cancer SusceptibilityK07CA088989 · NCI · UNIVERSITY OF VIRGINIA CHARLOTTESVILLE · PI ROPKA, MARY E · 2001 to 2006
$646k
Decision Aid for Patients with Advanced Lung CancerR21NR009346 · NINR · UNIVERSITY OF VIRGINIA CHARLOTTESVILLE · PI HOLLEN, PATRICIA JEAN · 2005 to 2006
$450k
Decision Making in Patients with Advanced Prostate CancerR21CA131754 · NCI · UNIVERSITY OF VIRGINIA · PI JONES, RANDY ALLEN · 2008 to 2009
$412k
NCI NIH HHS 1R21CA131754-01NCI NIH HHS K07 CA088989NCI NIH HHS P30 CA044579NCI NIH HHS P30 CA 44579NCI NIH HHS R21 CA131754NINR NIH HHS 1 R21 NR009346-01A1NINR NIH HHS R21 NR009346
6 · The paper itself

Abstract

PURPOSE/

objectivesTo examine the feasibility and acceptability of using a decision aid with an interactive decision-making process in patients with solid tumors and their caregivers during cancer-related treatment. RESEARCH APPROACH: A phenomenologic approach was used to analyze qualitative data, with a focus on the meaning of participants' lived experiences. Interviews were conducted by telephone or in person.

settingOutpatient clinics at two regional cancer centers.

participants160 total individuals; 80 patients with newly diagnosed breast (n = 22), advanced-stage prostate (n = 19), or advanced-stage lung (n = 39) cancer, and their caregivers (n = 80). METHODOLOGIC APPROACH: Twenty-seven of the 80 pairs engaged in audio recorded interviews that were conducted using a semistructured interview guide. Continuous text immersion revealed themes. Validity of qualitative analysis was achieved by member checking.

findingsSignificant findings included three themes: (a) the decision aid helped patients and caregivers understand treatment decisions better, (b) the decision aid helped patients and caregivers to be more involved in treatment decisions, and (c) frequent contact with the study nurse was valuable.

conclusionsDecision making was more complex than participants expected. The decision aid helped patients and caregivers make satisfying treatment decisions and become integral in a shared treatment decision-making process.

interpretationDecision aids can help patients and their caregivers make difficult treatment decisions affecting quantity and quality of life during cancer treatment. The findings provide valuable information for healthcare providers helping patients and their caregivers make treatment decisions through a shared, informed, decision-making process. KNOWLEDGE TRANSLATION: Decision aids can be helpful with treatment choices. Caregivers' understanding about treatment is just as important in the decision-making process as the patients' understanding. Incorporating decision aids that are delivered by healthcare providers or trained personnel has the potential to improve patients' decision satisfaction.

Indexed as

Decision MakingAdultAgedBreast NeoplasmsCaregiversFeasibility StudiesFemaleHumansInterviews as TopicLung NeoplasmsMaleNeoplasmsNurse-Patient RelationsNursing Methodology ResearchOncology NursingOutpatients

Identifiers

PMID23269778
PMCPMC3634347

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.