ArticleAJOB primary research2011
Ethics in Psychiatric Research: A Review of 25 Years of NIH-funded Empirical Research Projects.
Article in AJOB primary research, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring and evaluating participant understanding of consent processes in clinical trials: a systematic review.Trials · 2026Pooled it
- Increasing participation of people with thought disorder in clinical research.European psychiatry : the journal of the Association of European Psychiatrists · 2026Review
- Dental informed consent challenges and considerations for cognitively impaired patients.Periodontology 2000 · 2021Review
- Whose story is it? Mental health consumer and carer views on carer participation in research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- The "Ought-Is" Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice.The American journal of bioethics : AJOB · 2020Article
- Do human subject safeguards matter to potential participants in psychiatric genetic research?Journal of psychiatric research · 2019Article
- Using iterative learning to improve understanding during the informed consent process in a South African psychiatric genomics study.PloS one · 2017Article
- Addressing risks to advance mental health research.JAMA psychiatry · 2013Article
- Mandating Evidence-Based Informed Consent Practices: A Critical Engagement with IRB Leader Focus Group Findings.Ethics & human researchArticle
- Informed Consent to Research with Cognitively Impaired Adults: Transdisciplinary Challenges and Opportunities.Clinical gerontologistReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
backgroundThis paper reviews the past 25 years of empirical research funded by the National Institutes of Health (NIH) on matters of ethics in psychiatric research.
methodsUsing the NIH RePORTER and Medline databases, we identified 43 grants and 77 publications that involved the empirical study of a matter of ethics in research involving mental health service users.
resultsThese articles provide original and useful information on important topics, most especially the capacity to consent and the voluntariness of consent. For example, participants who share a diagnosis vary widely in levels of cognitive impairment that correlate with decisional capacity, and capacity to consent can be enhanced easily using iterative consent processes. Few articles address matters of justice or benefits in research, particularly from the perspectives of participants. No articles address matters of privacy, confidentiality, or researcher professionalism.
conclusionsDespite the usefulness of data from the studies conducted to date, current research on research ethics in psychiatry does not adequately address the concerns of service users as expressed in recent publications.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.