ArticleHealth expectations : an international journal of public participation in health care and health policy2015
What is the evidence base for public involvement in health-care policy?: results of a systematic scoping review.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 76 papers, 7 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
76 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Where Are the Gaps in Diabetes Care? An Evidence Gap Mapping of the Diabetes Patient Journey in Indonesia.Tropical medicine & international health : TM & IH · 2026Pooled it
- Public participation in decisions about measures to manage the COVID-19 pandemic: a systematic review.BMJ global health · 2024Pooled it
- Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation.The Cochrane database of systematic reviews · 2021Pooled it
- Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.Health research policy and systems · 2021Pooled it
- Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review.International journal of health policy and management · 2018Pooled it
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.PloS one · 2014Pooled it
- The Challenge of Public Participation in European Hospitals: A Portuguese Case Study.Portuguese journal of public health · 2026Article
- Being 'The Only Consumer' - Exploring the Lived Experiences of Health Consumer Representatives in Australian Health System Involvement.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Living labs as catalysts for integrated primary care: insights from a comprehensive community survey and co-creative design of community-based prevention and primary care.BMC primary care · 2026Article
- Towards Evidence of Rigour in Empirical Deliberative Democratic Methods: Development and Piloting of the C-JuRI Framework.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient perspectives on the use of artificial intelligence to support treatment decision making in renal cancer: findings from the KATY project.BMC medical informatics and decision making · 2026Article
- Conceptualizing culture change as an impact metric. A scoping review and abductive thematic analysis of culture-related outcomes from patient and public involvement in healthcare and health research.Research involvement and engagement · 2025Review
- Unpacking the Mystery of the Ontario Healthcare System in Canada: Ukrainian Temporary Migrants and Healthcare System Navigation.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2025Article
- Promoting informed health choices: the long and winding road.Journal of the Royal Society of Medicine · 2025Article
- Developing an evaluation tool for the impact of consumer partnerships in healthcare governance: a coproduced mixed methods study.BMJ open quality · 2025Article
- Article
- Social participation in health - case studies from primary health care in Kosovo.BMC public health · 2024Article
- A scoping review of patient and public involvement in empirical stroke research.International journal of stroke : official journal of the International Stroke Society · 2024Article
- Trends in Government-Initiated Public Engagement in Canadian Health Policy From 2000 to 2021.Healthcare policy = Politiques de sante · 2024Article
16 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPublic involvement in health-care policy has been advocated as a means to enhance health system responsiveness, yet evidence for its impact has been difficult to ascertain.
objectivesTo review the peer-reviewed empirical evidence on outcomes of public involvement in health-care policy.
methodsWe systematically searched PsychINFO and PubMed from November 2000 to April 2010 for empirical studies that reported on original research only; studies in languages other than English, German or French were excluded. Data were extracted using a standardized evidence table with a priori determined headings. MAIN
resultsNineteen studies were identified as eligible for inclusion in our review. We found that sound empirical evidence of the outcomes of public involvement activities in health care remains underdeveloped. The concept and the indicators used to examine and determine outcomes remain poorly specified and inconsistent, as does the reporting of the evidence. There was some evidence for the developmental role of public involvement, such as enhancing awareness, understanding and competencies among lay participants. Evidence for instrumental benefits of public involvement initiatives was less well documented.
conclusionsDespite the growing body of work on public involvement in health-care policy, evidence of its impact remains scarce; thus, firm conclusions about involvement activities that are appropriate and effective for policy development are difficult to draw. However, focus on outcomes risks missing the normative argument that involving the public in the health-care policy process may be seen to be of intrinsic value.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.