Evidence map›Paper›PMID 23247719›Full record

Trial reportJournal of cancer survivorship : research and practice2013

Are cancer registries a viable tool for cancer survivor outreach? A feasibility study.

Melissa Y Carpentier, Jasmin A Tiro, Lara S Savas, L Kay Bartholomew, Trisha V Melhado, Sharon P Coan, Keith E Argenbright, Sally W Vernon

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of cancer survivorship : research and practice, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Trial
  2. Trial
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  4. Randomized Noninferiority Trial of Telephone Delivery of BRCA1/2 Genetic Counseling Compared With In-Person Counseling: 1-Year Follow-Up.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2016
    Trial
  5. Article
  6. Patient-reported financial toxicity, quality of life, and health behaviors in insured US cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Melissa Y CarpentierUniversity of Texas School of Public Health, Houston, TX 77030, USA. Melissa.Y.Carpentier@uth.tmc.edu
Jasmin A Tiro
Lara S Savas
L Kay Bartholomew
Trisha V Melhado
Sharon P Coan
Keith E Argenbright
Sally W Vernon

Funding

Initiation of Colon Cancer Screening in VeteransR01CA112223 · NCI · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI VERNON, SALLY W. · 2007 to 2011
$2.9M
Quality of Life in Adolescent and Young Adult Testicular Cancer SurvivorsK07CA140159 · NCI · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI CARPENTIER, MELISSA Y. · 2010 to 2012
$362k
NCI NIH HHS K07 CA140159NCI NIH HHS K07CA140159NCI NIH HHS R01 CA112223NCI NIH HHS R01CA112223
6 · The paper itself

Abstract

purposeLittle is known about cancer survivors' receptivity to being contacted through cancer registries for research and health promotion efforts. We sought to (1) determine breast and colorectal cancer (CRC) survivors' responsiveness to a mailed survey using an academic medical center's cancer registry, (2) assess whether responsiveness varied according to sociodemographic characteristics and medical history, and (3) examine the prevalence and correlates of respondents' awareness and willingness to be contacted through the state cancer registry for future research studies.

methodsStage 0-III breast and CRC survivors diagnosed between January 2004 and December 2009 were identified from an academic medical center cancer registry. Survivors were mailed an invitation letter with an opt-out option, along with a survey assessing sociodemographic characteristics, medical history, and follow-up cancer care access and utilization.

resultsA total of 452 (31.4 %) breast and 53 (22.2 %) CRC survivors responded. Willingness to be contacted through the state cancer registry was high among both breast (74 %) and CRC (64 %) respondents even though few were aware of the registry and even fewer knew that their information was in the registry. In multivariable analyses, tumor stage I and not having a family history of cancer were associated with willingness among breast and CRC survivors, respectively.

conclusionsOur findings support the use of state cancer registries to contact survivors for participation in research studies. IMPLICATIONS FOR CANCER SURVIVORS: Survivors would benefit from partnerships between researchers and cancer registries that are focused on health promotion interventions.

Indexed as

Academic Medical CentersRegistriesResearch DesignAgedBreast NeoplasmsColorectal NeoplasmsCommunicationFeasibility StudiesFemaleHumansMaleMiddle AgedNeoplasm StagingSurveys and QuestionnairesSurvivors

Identifiers

PMID23247719
PMCPMC3568183

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.