ArticleAIDS care2013
"It's my secret": barriers to paediatric HIV treatment in a poor rural South African setting.
Article in AIDS care, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Incidence and Prevalence of Opportunistic and Other Infections and the Impact of Antiretroviral Therapy Among HIV-infected Children in Low- and Middle-income Countries: A Systematic Review and Meta-analysis.Clinical infectious diseases : an official publication of the Infectious Diseases Society of America · 2016Pooled it
- Clinical outcomes among HIV positive babies below 18 months of age, diagnosed under the Early Infant Diagnosis (EID) programme, India: a mixed-methods study.The Lancet regional health. Southeast Asia · 2025Article
- Leveraging community pharmacies for HIV services in South Africa: Opportunities and constraints.Southern African journal of HIV medicine · 2025Review
- The Burden of HIV Stigma and Associated Factors among HIV Infected Adolescents Attending HIV Clinics in Kampala City: A Cross-Sectional Study in Uganda.EC psychology and psychiatry · 2024Article
- Resistance is common in paediatric patients failing ART in South Africa.The Journal of antimicrobial chemotherapy · 2023Article
- Disclosure of human immunodeficiency virus status to children: Pattern followed by parents and caregivers.African journal of primary health care & family medicine · 2020Article
- Barriers to antiretroviral therapy initiation for HIV-positive children aged 2-18 months in Swaziland.African journal of AIDS research : AJAR · 2018Article
- Provision of antiretroviral therapy for children in Nelson Mandela Bay: Health care professionals' challenges.African journal of primary health care & family medicine · 2018Article
- Scaling a waterfall: a meta-ethnography of adolescent progression through the stages of HIV care in sub-Saharan Africa.Journal of the International AIDS Society · 2017Article
- Clinical outcomes in children and adolescents initiating antiretroviral therapy in decentralized healthcare settings in Zimbabwe.Journal of the International AIDS Society · 2017Article
- Promoting uptake of child HIV testing: an evaluation of the role of a home visiting program for orphans and vulnerable children in South Africa.AIDS care · 2016Article
- "Making it personal": ideology, the arts, and shifting registers in health promotion.AIDS care · 2016Article
- Non-Uptake of HIV Testing in Children at Risk in Two Urban and Rural Settings in Zambia: A Mixed-Methods Study.PloS one · 2016Article
- Perceived stigma by children on antiretroviral treatment in Cambodia.BMC pediatrics · 2014Article
- Access to HIV prevention and care for HIV-exposed and HIV-infected children: a qualitative study in rural and urban Mozambique.BMC public health · 2014Article
- Morbidity and health care resource utilization in HIV-infected children after antiretroviral therapy initiation in Côte d'Ivoire, 2004-2009.Journal of acquired immune deficiency syndromes (1999) · 2014Article
- Validation of 2 Spanish-Language Scales to Assess HIV-Related Stigma in Communities.Journal of the International Association of Providers of AIDS CareArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 5 countries.
Funding
Abstract
In South Africa, a third of children born are exposed to HIV, while fewer undergo an HIV confirmatory test. Anti-retroviral therapy (ART) coverage among children remains low-despite roll-out of the national ART programme in South Africa in 2004. This study sought to understand critical barriers to seeking HIV-related care for children in rural South Africa. Data presented in this article derive from community-based qualitative research in poor rural villages in north-east South Africa; this includes 21 in-depth interviews in 2008 among caregivers of children identified as HIV-positive in 2007 from a randomly selected community-based sample. Using NVIVO 8, data were coded and analysed, using a constant comparative method to identify themes and their repetitions and variations. Structural barriers leading to poor access to health care, and social and systems barriers, all influenced paediatric HIV treatment seeking. Of concern was the expressed need to maintain secrecy regarding a child's HIV status to avoid stigma and discrimination, and misconceptions regarding the course of HIV disease in children; this led to a delay in seeking appropriate care. These barriers need to be addressed, including through focused awareness campaigns, improved access to health care and interventions to address rural poverty and development at both household and community levels. In addition, training of health care professionals to improve their attitudes and practice may be necessary. However, this study only provides the perspective of the caregivers; further studies with health care providers are needed to gain a fuller picture for appropriate policy and practice guidance.
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Registered trials
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