ArticleJournal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society
Surviving colorectal cancer: long-term, persistent ostomy-specific concerns and adaptations.
Article in Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
45 citing papers in PubMed, 4 syntheses or guidelines pooled it, 116 citations in OpenAlex.
- Body Image Following Ostomy Surgery for Cancer: A Systematic Review.Psycho-oncology · 2026Pooled it
- Psychosocial effects and quality of life after stoma surgery: systematic review and qualitative meta-synthesis.BMC psychology · 2026Pooled it
- Conversations for providers caring for patients with rectal cancer: Comparison of long-term patient-centered outcomes for patients with low rectal cancer facing ostomy or sphincter-sparing surgery.CA: a cancer journal for clinicians · 2016Pooled it
- Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016Pooled it
- Self-management goals of cancer survivors with an ostomy.Journal of cancer survivorship : research and practice · 2023Trial
- Trial
- Cancer survivors' greatest challenges of living with an ostomy: findings from the Ostomy Self-Management Telehealth (OSMT) randomized trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- Lifestyle intervention for Latina cancer survivors and caregivers: the Nuestra Salud randomized pilot trial.Journal of cancer survivorship : research and practice · 2021Trial
- Caregiving Experiences, Supportive Care Needs and Coping Strategies Among Family Caregivers of Patients with Colorectal Cancer in Kazakhstan: A Qualitative Descriptive Study.Nursing reports (Pavia, Italy) · 2026Article
- Perceived Ostomy odor and body image disturbance in colorectal cancer survivors: differences by ostomy status and sex.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Sexuality and Intimacy in Inflammatory Bowel Disease: A Phenomenological Study.Healthcare (Basel, Switzerland) · 2026Article
- Psychological Adaptation in Colorectal Cancer Survivors: Pilot Study Findings.HCA healthcare journal of medicine · 2026Article
- Where healthcare systems fall short in long-term ostomy care: implications for quality of life, healthcare utilization, and sustainable care pathways.Frontiers in gastroenterology (Lausanne, Switzerland) · 2026Review
- Challenges faced by patients undergoing fecal ostomy surgery: a qualitative study of colorectal cancer patient perspectives.Journal of gastrointestinal surgery : official journal of the Society for Surgery of the Alimentary Tract · 2025Article
- Colorectal cancer survivors' adjustment to permanent colostomy in Switzerland: A qualitative analysis.Journal of health psychology · 2025Article
- Psychosocial Impact of Ostomies in Women With Colorectal Cancer: An Integrative Review.Journal of the advanced practitioner in oncology · 2025Review
- Article
- Clinical and Demographic Differences Among Cancer Survivors With Ostomies With and Without Informal Caregivers.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Life with a stoma across five European countries-a cross-sectional study on long-term rectal cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Stoma versus anastomosis after sphincter-sparing rectal cancer resection; the impact on health-related quality of life.International journal of colorectal disease · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 1 institution in 1 country.
Funding
Abstract
purposeThe purpose of this article was to describe persistent ostomy-specific concerns and adaptations in long-term (>5 years) colorectal cancer survivors with ostomies. SUBJECTS AND SETTINGS: Thirty-three colorectal cancer survivors who participated in 8 gender- and health-related quality of life stratified focus groups and 130 colorectal cancer survivors who provided written comments to 2 open-ended questions on ostomy location and pouch problems participated in the study. Data were collected on health maintenance organization members in Oregon, southwestern Washington, and northern California.
methodsQualitative data were analyzed for the 8 focus groups and written comments from 2 open-ended survey questions. Discussions from the focu s groups were recorded, transcribed, and analyzed using content analysis. Written content from the open-ended questions was derived from a mailed questionnaire on health-related quality of life in survivors with ostomies and analyzed using content analysis.
resultsDiscussions related to persistent ostomy-related issues more than 5 years after formation were common. Persistent ostomy-related issues were focused on clothing restrictions and adaptations, dietary concerns, issues related to ostomy equipment and self-care, and the constant need to find solutions to adjust and readjust to living with an ostomy.
conclusionsOstomy-specific concerns persist 5 years and more for long-term colorectal cancer survivors after initial ostomy formation. Adaptations tend to be individualized and based on trial and error. Findings underscore the need to develop long-term support mechanisms that survivors can access to promote better coping and adjustment to living with an ostomy.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.