ReviewPediatrics2013
Retention and research use of residual newborn screening bloodspots.
Review in Pediatrics, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed.
- The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.Journal of empirical research on human research ethics : JERHRE · 2016Trial
- Public attitudes toward the research use and storage of residual dried blood spots from newborn screening in China.BMC medical ethics · 2025Article
- Understanding Genetic Screening: Harnessing Health Information to Prevent Disease Risks.International journal of medical sciences · 2025Review
- Foundational Considerations for Artificial Intelligence Using Ophthalmic Images.Ophthalmology · 2022Article
- When Not to Ask: A Defense of Choice-Masking Nudges in Medical Research.Journal of health care law & policy · 2022Article
- Local deliberative approach to the bioethical controversies: An opportunity for the proper implementation of neonatal screeningBiomedica : revista del Instituto Nacional de Salud · 2020Article
- Maximizing the value of human biospecimens: Lessons from coronavirus and the Seattle flu study.American journal of medical genetics. Part A · 2020Article
- A Framework to Evaluate Ethical Considerations with ML-HCA Applications-Valuable, Even Necessary, but Never Comprehensive.The American journal of bioethics : AJOB · 2020Article
- Neonatal Lead (Pb) Exposure and DNA Methylation Profiles in Dried Bloodspots.International journal of environmental research and public health · 2020Article
- Parental perspectives on retention and secondary use of neonatal dried bloodspots: a Dutch mixed methods study.BMC pediatrics · 2019Article
- Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2019Article
- Newborn dried blood spot samples in Denmark: the hidden figures of secondary use and research participation.European journal of human genetics : EJHG · 2019Article
- Newborn screening for severe combined immunodeficiency and T-cell lymphopenia.Immunological reviews · 2019Review
- Metabolic profiles derived from residual blood spot samples: A longitudinal analysis.Gates open research · 2018Article
- An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.Journal of empirical research on human research ethics : JERHRE · 2017Article
- Engaging a state: Facebook comments on a large population biobank.Journal of community genetics · 2017Article
- Genomic newborn screening: public health policy considerations and recommendations.BMC medical genomics · 2017Article
- Screening of Newborns for Disorders with High Benefit-Risk Ratios Should Be Mandatory.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2016Article
- Eliciting parental support for the use of newborn blood spots for pediatric research.BMC medical research methodology · 2016Article
- Framing optional genetic testing in the context of mandatory newborn screening tests.BMC medical informatics and decision making · 2015Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
The storage and use of residual newborn screening dried blood specimens has generated significant controversy in the past 5 years, primarily because of public concerns over the lack of parental knowledge and consent for these activities. State policies addressing the management of these specimens vary widely, and there is currently little guidance to aid new state policy development to address the concerns of program professionals, investigators, and the general public. This article offers guidance for state policy based on multiple sources of data, including public attitudes, professional statements, state experience, and an analysis of the ethical, social, legal, and biomedical issues from a multidisciplinary group of scholars. This guidance will be useful for state programs that seek to develop policies that are informed by a contemporary analysis of the key ethical, legal, and social aspects of this practice. This article represents the work of the authors and does not represent American Academy of Pediatrics policy.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.