ArticlePatient education and counseling2013
Frequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.
Article in Patient education and counseling, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 3 syntheses or guidelines pooled it, 23 citations in OpenAlex.
- Cystic Fibrosis Newborn Screening: A Systematic Review-Driven Consensus Guideline from the United States Cystic Fibrosis Foundation.International journal of neonatal screening · 2025Guideline
- Psychosocial issues of neonatal screening in the context of its major expansion: a scoping review.Frontiers in psychology · 2025Pooled it
- Understanding Effective Delivery of Patient and Family Education in Pediatric OncologyJournal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology NursesPooled it
- Improving the quality of physician communication with rapid-throughput analysis and report cards.Patient education and counseling · 2014Trial
- Parental Preferences about Policy Options Regarding Disclosure of Incidental Genetic Findings in Newborn Screening: Using Videos and the Internet to Educate and Obtain Input.International journal of neonatal screening · 2022Article
- Assessment of parent understanding in conferences for critically ill neonates.Patient education and counseling · 2022Article
- Primary care providers' role in newborn screening result notification for cystic fibrosis.Canadian family physician Medecin de famille canadien · 2021Article
- Emotional Communication in HIV Care: An Observational Study of Patients' Expressed Emotions and Clinician Response.AIDS and behavior · 2019Observational
- Genetic Counselors' Experience with and Opinions on the Management of Newborn Screening Incidental Carrier Findings.Journal of genetic counseling · 2018Article
- Benefit of Report Card Feedback After Point-of-Care Assessment of Communication Quality Indicators.Journal of patient-centered research and reviews · 2017Article
- Primary care providers' experiences notifying parents of cystic fibrosis newborn screening results.Clinical pediatrics · 2015Article
- Disparities in current and future childhood and newborn carrier identification.Journal of genetic counseling · 2014Article
- Developing patient-friendly genetic and genomic test reports: formats to promote patient engagement and understanding.Genome medicine · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
objectiveTo examine the quality of communication likely to be experienced by parents when being first informed about how newborn screening identified heterozygous "carrier" status for cystic fibrosis or sickle cell disease.
methodsPrimary care providers (PCPs) of infants found to have carrier status were telephoned over a 48-month period, and asked to rehearse with a standardized patient how they would inform the infants' parent(s). 214 rehearsal transcripts were abstracted using explicit criteria methods to measure the frequency of five categories of high-quality communication behaviors.
resultsOverall, PCPs used large amounts of jargon and failed to use high quality communication behaviors. On average, PCPs used 18.6 total jargon words (8.7 unique words), but explained 2.4 jargon words. The most frequent assessment of understanding was the close-ended version, although it was only seen in 129 of 214 transcripts. The most common organizing behavior was importance emphasis (121/214). Precautionary empathy was rare; the most frequent behavior was "instruction about emotion" (33/214).
conclusionThe limited use of high-quality communication behaviors in rehearsals raises concern about parental understanding, decision-making, and psychosocial outcomes after newborn screening. PRACTICE IMPLICATIONS: Measurement of specific behaviors may help PCPs to improve communication, and thereby improve the patient experience.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.