ArticleJournal of bioethical inquiry2012
Genetic research and aboriginal and Torres Strait Islander Australians.
Article in Journal of bioethical inquiry, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 28 citations in OpenAlex.
- The relationship between uncertainty and trust in genomic medicine and research: A literature review and thematic analysis.European journal of human genetics : EJHG · 2026Review
- Exploring Traditional Breast Cancer Risk Genes Among Aboriginal and Torres Strait Islander Women.Life (Basel, Switzerland) · 2026Article
- Article
- Culturally safe and ethical biomarker and genomic research with Indigenous peoples-a scoping review.BMC global and public health · 2024Article
- Precision medicine in Australia: indigenous health professionals are needed to improve equity for Aboriginal and Torres Strait Islanders.International journal for equity in health · 2024Article
- The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing.Frontiers in medicine · 2022Article
- Indigenous knowledge around the ethics of human research from the Oceania region: A scoping literature review.Philosophy, ethics, and humanities in medicine : PEHM · 2021Article
- A Pathway to Precision Medicine for Aboriginal Australians: A Study Protocol.Methods and protocols · 2021Article
- Trust in Scholarly Communications and Infrastructure: Indigenous Data Sovereignty.Frontiers in research metrics and analytics · 2021Review
- Breast Cancer in Australian Indigenous Women: Incidence, Mortality, and Risk FactorsAsian Pacific journal of cancer prevention : APJCP · 2017Article
- Hunter-gatherer genomics: evolutionary insights and ethical considerations.Current opinion in genetics & development · 2016Review
- Article
- Cases and culture : the benefits and risks of narrating "life as lived".Journal of bioethical inquiry · 2012Article
- Genomics in research and health care with Aboriginal and Torres Strait Islander peoples.Monash bioethics reviewArticle
Corrections and comments
- Erratum issuedRouhani, Lobna [added]
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
While human genetic research promises to deliver a range of health benefits to the population, genetic research that takes place in Indigenous communities has proven controversial. Indigenous peoples have raised concerns, including a lack of benefit to their communities, a diversion of attention and resources from non-genetic causes of health disparities and racism in health care, a reinforcement of "victim-blaming" approaches to health inequalities, and possible misuse of blood and tissue samples. Drawing on the international literature, this article reviews the ethical issues relevant to genetic research in Indigenous populations and considers how some of these have been negotiated in a genomic research project currently under way in a remote Aboriginal community. We consider how the different levels of Indigenous research governance operating in Australia impacted on the research project and discuss whether specific guidelines for the conduct of genetic research in Aboriginal and Torres Strait Islander communities are warranted.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.