ArticleBMC health services research2012
Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities.
Article in BMC health services research, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it, 51 citations in OpenAlex.
- Outcome measures for economic evaluations and cost-effectiveness analyses of interventions for people with intellectual disabilities: A methodological systematic review.Journal of applied research in intellectual disabilities : JARID · 2023Pooled it
- Narrative synthesis systematic review of Pakistani women's health outcomes from primary care interventions.BMJ open · 2022Pooled it
- Trial
- A framework to amplify the voices of underrepresented children and young people in rare disease research.Journal of patient-reported outcomes · 2026Article
- The importance of patient-reported outcomes: A call for their integration in the routine care of patients with multiple sclerosis.Multiple sclerosis (Houndmills, Basingstoke, England) · 2025Review
- Improving the Implementation of Patient-Reported Outcome Measure in Clinical Practice: Tackling Current Challenges With Innovative Digital Communication Technologies.Journal of medical Internet research · 2025Article
- Cross-cultural adaptation and validation of Dysphagia Handicap Index in Bangladesh.Journal of patient-reported outcomes · 2025Article
- Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Readability of Patient-reported Outcome Measures Used in Plastic Surgery.Plastic and reconstructive surgery. Global open · 2024Article
- Evaluating cancer patient-reported experience measures against health literacy best practices.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- "Peace of Mind" After Mastectomy: A Scoping Review.Annals of surgical oncology · 2024Article
- Measuring refugees' capabilities: translation, adaptation, and valuation of the OxCAP-MH into Juba Arabic for use among South Sudanese male refugees in Uganda.Journal of patient-reported outcomes · 2024Article
- Perspectives of Patients and Professionals on Implementing a Computer Adaptive Vision-Related Quality of Life Outcome (CAT-EyeQ) in Clinical Practice.Translational vision science & technology · 2024Article
- Patient-reported outcome measures can advance population health, but is access to instruments and use equitable?Frontiers in pediatrics · 2022Article
- Defining a Standard Set of Patient-Reported Outcomes for Patients With Advanced Ovarian Cancer.Frontiers in oncology · 2022Article
- Patient-reported outcome measurement: a bridge between health and social care?Journal of the Royal Society of Medicine · 2021Article
- Measuring Change in Health Status Over Time (Responsiveness): A Meta-analysis of the SF-36 in Cardiac and Pulmonary Rehabilitation.Archives of rehabilitation research and clinical translation · 2021Review
- Patient-centered outcomes used in pediatric focused manual therapies research studies: a secondary data analysis of a systematic review.Journal of patient-reported outcomes · 2021Article
- Do Rural Residents in China Understand EQ-5D-5L as Intended? Evidence From a Qualitative Study.PharmacoEconomics - open · 2021Article
- An evaluation of the spread and scale of PatientToc™ from primary care to community pharmacy practice for the collection of patient-reported outcomes: A study protocol.Research in social & administrative pharmacy : RSAP · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient reported outcome measures (PROMs) are self-report measures of health status increasingly promoted for use in healthcare quality improvement. However people with low literacy skills or learning disabilities may find PROMs hard to complete. Our study investigated stakeholder views on the accessibility and use of PROMs to develop suggestions for more inclusive practice.
methodsTaking PROMs recommended for chronic obstructive pulmonary disease (COPD) as an example, we conducted 8 interviews with people with low literacy skills and/or learning disabilities, and 4 focus groups with 20 health professionals and people with COPD. Discussions covered the format and delivery of PROMs using the EQ-5D and St George Respiratory Questionnaire as prompts. Thematic framework analysis focused on three main themes: Accessibility, Ease of Use, and Contextual factors.
resultsAccessibility included issues concerning the questionnaire format, and suggestions for improvement included larger font sizes and more white space. Ease of Use included discussion about PROMs' administration. While health professionals suggested PROMs could be completed in waiting rooms, patients preferred settings with more privacy and where they could access help from people they know. Contextual Factors included other challenges and wider issues associated with completing PROMs. While health professionals highlighted difficulties created by the system in managing patients with low literacy/learning disabilities, patient participants stressed that understanding the purpose of PROMs was important to reduce intimidation.
conclusionsAdjusting PROMs' format, giving an explicit choice of where patients can complete them, and clearly conveying PROMs' purpose and benefit to patients may help to prevent inequality when using PROMs in health services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.