ArticleJournal of oncology practice2012
Understanding patients' attitudes toward communication about the cost of cancer care.
Article in Journal of oncology practice, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03780491 (Understanding and Addressing Patient and Provider Preferences Around Discussions of Cost of Breast Cancer Care), which is not on this map. Cited by 81 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Understanding and Addressing Patient and Provider Preferences Around Discussions of Cost of Breast Cancer Care
Who cites it
81 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Communication of costs and financial burdens between cancer patients and healthcare providers: a qualitative systematic review and meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Pooled it
- Physician-patient communication of costs and financial burden of cancer and its treatment: a systematic review of clinical guidelines.BMC cancer · 2021Pooled it
- Financial Toxicity Monitoring in a Randomized Controlled Trial of Patient-Reported Outcomes During Cancer Treatment (Alliance AFT-39).Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2023Trial
- The impact of adding cost information to a conversation aid to support shared decision making about low-risk prostate cancer treatment: Results of a stepped-wedge cluster randomised trial.Health expectations : an international journal of public participation in health care and health policy · 2023Trial
- Trial
- Public Mistrust of the U.S. Health Care System's Profit Motives: Mixed-Methods Results from a Randomized Controlled Trial.Journal of general internal medicine · 2017Trial
- Capturing Financial Burden Concerns in an ALS Multidisciplinary Clinic.Muscle & nerve · 2026Article
- Advanced cancer treatment decisions and their patient-facing financial burdens: a thematic analysis.The oncologist · 2026Article
- Cost-effectiveness analysis of a bone metastasis cancer board for skeletal-related events of breast cancer.Japanese journal of clinical oncology · 2026Article
- Communication of Cost in Thyroidectomy: A Mixed-Methods Analysis of Financial Toxicity.Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery · 2026Article
- Breast Cancer Patient Attitudes Towards Oncology Drug Costs in Ireland.Current oncology (Toronto, Ont.) · 2026Article
- Financial Toxicity in Patients With Breast Cancer Treated at Private Medicine Institutions in Brazil.Cancer medicine · 2026Article
- Screening tools to assess cancer-related financial toxicity: a scoping systematic review and thematic analysis protocol.Frontiers in medicine · 2026Article
- Financial toxicity in patients with newly diagnosed hepatocellular carcinoma: a cross-sectional study.Journal of gastrointestinal oncology · 2025Article
- Understanding cancer survivor cost communication experiences and preferences.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Potential profile analysis of financial toxicity and its related factors among lung cancer patients.BMC cancer · 2025Article
- Financial hardship, financial toxicity, and transportation challenges among older cancer survivors treated with curative-intent surgery.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Patients' Attitudes Towards Integrating Environmental Sustainability Into Healthcare Decision-Making: An Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patients With Skin Cancer Prefer to Participate in Procedure Cost Discussions: A Cross-Sectional Survey.Dermatology research and practice · 2025Article
- Financial toxicity and psychological distress in cardiovascular non-cancer multimorbidity: a latent profile analysis and causal weighting.Frontiers in psychology · 2025Article
21 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeRecent publications have promoted physician-patient communication on cost as a means of decreasing overall spending and minimizing patients' financial burden in oncology. No study has assessed patients' perspectives on cost communication in oncology. We sought to describe oncology patients' attitudes toward cost communication, explore potential predictors for patients' communication preferences, and assess how patients with cancer consider cost when making management decisions.
methodsA 31-item questionnaire was developed to measure oncology patients' communication preferences regarding the cost of cancer care, focusing on out-of-pocket costs. Items were adapted from other instruments when possible. After piloting, patients were recruited from an academic ambulatory oncology practice. Basic descriptive statistics were applied.
resultsOf the 771 patients approached, 256 responded (response rate, 33%). Most (68%) preferred to know about out-of-pocket costs before treatment. A majority (59%) wanted their physician to discuss these costs with them. Although 76% reported feeling comfortable discussing cost with their physician, 74% were amenable to discussing cost with someone other than their physician. Most patients did not consider out-of-pocket costs (57%) or the health care costs of the country (61%) in their decision making, nor did they believe their physician should (55%). Patients receiving active chemotherapy were less likely to want to discuss out-of-pocket costs with their physician (P = .035).
conclusionPatients' comfort with and desire to discuss cancer costs exceed that of oncologists, suggesting a need to educate oncologists on this important topic. A patient's desire to understand treatment-associated cost does not equate with a desire for cost to influence medical decision making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.