ReviewSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2013
Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use.
Review in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Effectiveness of ICT-based intimate partner violence interventions: a systematic review.BMC public health · 2020Pooled it
- Use and taxonomy of social media in cancer-related research: a systematic review.American journal of public health · 2014Pooled it
- Pre-post analysis of a social capital-based exercise adherence intervention for breast cancer survivors with moderate fatigue: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Trial
- Hospital and community supportive care for young women with breast cancer: a scoping review and environmental scan.Journal of cancer survivorship : research and practice · 2026Review
- Connected and supported: a scoping review of how online communities provide social support for breast cancer survivors.Journal of cancer survivorship : research and practice · 2026Article
- A critical analysis of online social support websites for Australians seeking bariatric surgery.Australian journal of psychology · 2026Article
- Organisations supporting cardiac arrest survivors: An exploratory survey of organisational structures and activities.Resuscitation plus · 2025Article
- A Taxonomy for Health Information Systems.Journal of medical Internet research · 2024Review
- Predicting the Effectiveness of a Mindfulness Virtual Community Intervention for University Students: Machine Learning Model.Interactive journal of medical research · 2024Article
- Stage distinctive communication networks of the online breast cancer community.Scientific reports · 2023Article
- A critical analysis of online social support for young people experiencing chronic pain.Australian journal of psychology · 2023Article
- CANCER PAIN AND THERAPY.Acta clinica Croatica · 2022Review
- Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients.Journal of community psychology · 2022Article
- A technology-based information and coaching/support program and self-efficacy of Asian American breast cancer survivors.Research in nursing & health · 2021Article
- How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support.Journal of cancer survivorship : research and practice · 2021Article
- Investigating relationships among cancer survivors' engagement in an online support community, social support perceptions, well-being, and moderating effects of existing (offline) social support.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Effectiveness of an 8-Week Web-Based Mindfulness Virtual Community Intervention for University Students on Symptoms of Stress, Anxiety, and Depression: Randomized Controlled Trial.JMIR mental health · 2020Article
- The role of off-topic discussions in online health support groups: insights from a content analysis of an online rectal cancer group.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Superusers' Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study.Journal of medical Internet research · 2020Article
- Exploring Strategies for Using Social Media to Self-Manage Health Care When Living With and Beyond Breast Cancer: In-Depth Qualitative Study.Journal of medical Internet research · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
purposeOnline communities have been heralded as one of the most promising health resources on the Internet. The purpose of this study was to identify the characteristics and levels of use of online communities for breast cancer survivors.
methodsUsing Google, we identified websites with a string of computer-mediated communication terms and individual queries of three to five words of online community terms. This was complemented by a review of website resource lists and personal libraries. Two reviewers independently extracted information on their general characteristics and number of members and message board posts. A coding scheme guided content analysis.
resultsWe found 111 websites. Most sites (n = 64, 65.8 %) had a broad focus (e.g., health, cancer, or general). One third (n = 38, 34.2 %) were exclusive to breast cancer and 11 catered to specific disease characteristics. The majority were American (n = 79, 75.2 %), nonprofit (55.0 %), and moderated (69.5 %). Most moderators (85.7 %) were staff or community members; eight sites were moderated by health professionals. Greater than one-third of sites (n = 40, 36 %) were initiated by breast cancer survivors or loved ones. Breast cancer-specific sites contained a total of 4,186,275 posts. One-third (n = 10) contained 93.4 % of posts, displaying over 100,000 posts each. As of April 3, 2012, eight sites were discontinued.
conclusionsThere is a wide range of online communities available for breast cancer survivors with extensive archives of personal illness experiences. Future efforts should focus on identifying the factors that determine their success and effectiveness.
Indexed as
Identifiers
23179491What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.