Evidence map›Paper›PMID 23167558›Full record

SynthesisDisability and rehabilitation2013

Self-management: a systematic review of outcome measures adopted in self-management interventions for stroke.

Emma J Boger, Sara Demain, Sue Latter

Registry-linked trialOpen access · bronzeAbstract readSystematic Review
In one paragraph

Synthesis in Disability and rehabilitation, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03993574 (Feasibility of a Stroke Specific Self-management Program), which is not on this map. Cited by 16 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 8 pooled it
4.3field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03993574 naunknown statusnot on this mapstarted 2019, after this paper: background citation

Feasibility of a Stroke Specific Self-management Program

TypeinterventionalSponsorThe University of Texas Medical Branch, GalvestonRan2019 to 2022Enrolled28ConditionsStroke, Chronic ConditionsArmsSelf- management program, Standard care
3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 8 syntheses or guidelines pooled it, 45 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. A systematic review of measurement properties of the instruments measuring health-related quality of life in patients with irritable bowel syndrome.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016
    Pooled it
  5. The measurement properties of the IKDC-subjective knee form.Knee surgery, sports traumatology, arthroscopy : official journal of the ESSKA · 2015
    Pooled it
  6. Pooled it
  7. Pooled it
  8. Measurement properties of rheumatoid arthritis-specific quality-of-life questionnaires: systematic review of the literature.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014
    Pooled it
  9. Article
  10. Article
  11. The structural and convergent validity of three commonly used measures of self-management in persons with neurological conditions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Article
  12. Article
  13. Review
  14. Article
  15. Article
  16. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 1 institution in 1 country.

Emma J BogerFaculty of Health Sciences, University of Southampton, Southampton, UK. e.j.boger@soton.ac.uk
Sara Demain
Sue Latter
University of Southampton · GB

Funding

Department of Health PDF-2011-04-016
6 · The paper itself

Abstract

purposeTo systematically review the psychometric properties of outcome measures used in stroke self-management interventions (SMIs) to (1) inform researchers, clinicians and commissioners about the properties of the measures in use and (2) make recommendations for the future development of self-management measurement in stroke.

methodsElectronic databases, government websites, generic internet search engines and hand searches of reference lists. Abstracts were selected against inclusion criteria and retrieved for appraisal and systematically scored, using the COSMIN checklist.

resultsThirteen studies of stroke self-management originating from six countries were identified. Forty-three different measures (mean 5.08/study, SD 2.19) were adopted to evaluate self-SMIs. No studies measured self-management as a discreet concept. Six (46%) studies included untested measures. Eleven (85%) studies included at least one measure without reported reliability and validity in stroke populations.

conclusionsThe use of outcome measures which are related, indirect or proxy indicators of self-management and that have questionable reliability and validity, contributes to an inability to sensitively evaluate the effectiveness of stroke self-SMIs. Further enquiry into how the concept of self-management in stroke operates, would help to clarify the nature and range of specific self-management activities to be targeted and aid the selection of existing appropriate measures or the development of new measures.

Indexed as

Stroke RehabilitationHumansOutcome Assessment, Health CarePsychometricsReproducibility of ResultsResearch DesignSelf CareTreatment Outcome

Identifiers

PMID23167558
PMCPMC3741018
OpenAlexW2000777111

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.