Trial reportLupus2013
Designing an intervention for women with systemic lupus erythematosus from medically underserved areas to improve care: a qualitative study.
Trial report in Lupus, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it, 54 citations in OpenAlex.
- Assessing and improving communication strategies among healthcare providers and African American individuals with systemic lupus: a scoping review.BMC rheumatology · 2026Pooled it
- Pooled it
- Does social support reduce bodily pain among African American women with SLE? Findings from a randomised controlled trial.Lupus science & medicine · 2025Trial
- Increasing Disease-Specific Knowledge in Patients with SLE Through a Structured One-Day Seminar: Results of a Randomized, Controlled Study.Healthcare (Basel, Switzerland) · 2026Article
- Italian Systemic Lupus Erythematosus (SLE) Patients: Overview of Their Quality of Life and Unmet Needs.Journal of clinical medicine · 2025Article
- Barriers and facilitators to medical care retention for pediatric systemic lupus erythematosus in South Africa: a qualitative study.Pediatric rheumatology online journal · 2024Article
- Barriers and facilitators to medical care retention for pediatric systemic lupus erythematosus in South Africa: a qualitative study.Research square · 2024Article
- Article
- Peer Support in Rheumatic Diseases: A Narrative Literature Review.Patient preference and adherence · 2023Review
- Formative research to promote lupus awareness and early screening at Historically Black College and University (HBCU) communities in South Carolina.BMC rheumatology · 2022Article
- Psychological Implications to the Therapy of Systemic Lupus Erythematosus.International journal of environmental research and public health · 2022Review
- Use of Quality Measures to Identify Disparities in Health Care for Systemic Lupus Erythematosus.Rheumatic diseases clinics of North America · 2020Review
- Exploring the Perceived Impact of the Chronic Disease Self-Management Program on Self-Management Behaviors among African American Women with Lupus: A Qualitative Study.ACR open rheumatology · 2020Article
- Article
- Article
- Article
- Article
- Peer-to-Peer Mentoring for African American Women With Lupus: A Feasibility Pilot.Arthritis care & research · 2018Article
- "We Would Still Find Things to Talk About": Assessment of Mentor Perspectives in a Systemic Lupus Erythematosus Intervention to Improve Disease Self-Management, Empowering SLE Patients.Journal of the National Medical Association · 2018Article
- Research Ethics in Behavioral Interventions Among Special Populations: Lessons From the Peer Approaches to Lupus Self-Management Study.The American journal of the medical sciences · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 2 institutions in 2 countries.
Funding
Abstract
objectiveSystemic lupus erythematosus (lupus) disproportionately affects women, racial/ethnic minorities and low-income populations. We held focus groups for women from medically underserved communities to discuss interventions to improve care.
methodsFrom our Lupus Registry, we invited 282 women, ≥18 years, residing in urban, medically underserved areas. Hospital-based clinics and support groups also recruited participants. Women were randomly assigned to three focus groups. Seventy-five-minute sessions were recorded, transcribed and coded thematically using interpretative phenomenologic analysis and single counting methods. We categorized interventions by benefits, limitations, target populations and implementation questions.
resultsTwenty-nine women with lupus participated in three focus groups, (n = 9, 9, 11). 80% were African American and 83% were from medically underserved zip codes. Themes included the desire for lupus education, isolation at the time of diagnosis, emotional and physical barriers to care, and the need for assistance navigating the healthcare system. Twenty of 29 participants (69%) favored a peer support intervention; 17 (59%) also supported a lupus health passport. Newly diagnosed women were optimal intervention targets. Improvements in quality of life and mental health were proposed outcome measures.
conclusionWomen with lupus from medically underserved areas have unique needs best addressed with an intervention designed through collaboration between community members and researchers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.