ArticleAmerican journal of public health2012
Ethical issues in health research with novel online sources.
Article in American journal of public health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.BMC medical ethics · 2023Article
- Building capacity for citizen science in health promotion: a collaborative knowledge mobilisation approach.Research involvement and engagement · 2023Review
- Article
- Participatory Disease Surveillance Systems: Ethical Framework.Journal of medical Internet research · 2019Article
- User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study.JMIR research protocols · 2018Article
- Crowdsourced Health Data: Comparability to a US National Survey, 2013-2015.American journal of public health · 2017Article
- Constructing Ebola transmission chains from West Africa and estimating model parameters using internet sources.Epidemiology and infection · 2017Article
- Open sharing of genomic data: Who does it and why?PloS one · 2017Article
- Rethinking the ethical approach to health information management through narration: pertinence of Ricœur's 'little ethics'.Medicine, health care, and philosophy · 2016Article
- Research led by participants: a new social contract for a new kind of research.Journal of medical ethics · 2016Article
- Ethical challenges of big data in public health.PLoS computational biology · 2015Article
- Key challenges for next-generation pharmacogenomics: Science & Society series on Science and Drugs.EMBO reports · 2014Article
- Article
- Adapting standards: ethical oversight of participant-led health research.PLoS medicine · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.